Storage pool disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is storage pool disease?

Storage pool disease is a condition characterized by certain disorders with platelet granules. Some symptoms of storage pool disease include bleeding easily and bruising.

Common symptoms reported by people with storage pool disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with storage pool disease

Let’s build this page together! When you share what it’s like to have storage pool disease through your profile, those stories and data appear here too.

Got a question about living with storage pool disease? Members in the forum might have the answers.

Compare treatments taken by people with storage pool disease

Let’s build this page together! When you share what it’s like to have storage pool disease through your profile, those stories and data appear here too.

Got a question about living with storage pool disease? Members in the forum might have the answers.

Who has storage pool disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 1
40s 0
50s 2
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 1

These charts show data from storage pool disease patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have storage pool disease through your profile, those stories and data appear here too.

Got a question about living with storage pool disease? Members in the forum might have the answers.