Storage pool disease

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What is storage pool disease?

Storage pool disease is a condition characterized by certain disorders with platelet granules. Some symptoms of storage pool disease include bleeding easily and bruising.

Common symptoms reported by people with storage pool disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with storage pool disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Nucynta)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with storage pool disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with storage pool disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Nucynta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with storage pool disease, who reported starting treatments within the last 5 years.
Last updated:

Who has storage pool disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 1
40s 0
50s 2
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

100% Female
0% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 1

These charts show data from storage pool disease patients who have completed their condition history
Last updated:
No data

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Got a question about living with storage pool disease? Members in the forum might have the answers.