SUNCT syndrome

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What is SUNCT syndrome?

SUNCT syndrome is an acronym for short-lasting unilateral neuralgiform headache with conjunctival injection and tearing, it is a type of painful headache that is characterized as one sided and usually around the eye area.

Common symptoms reported by people with SUNCT syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with SUNCT syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
2
Tried for
SUNCT syndrome (2)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
1
Tried for
SUNCT syndrome (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1) SUNCT syndrome (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
SUNCT syndrome (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
SUNCT syndrome (1)
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
1
Tried for
SUNCT syndrome (1)

Data from patients with SUNCT syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with SUNCT syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for SUNCT syndrome (2 evaluations)
Side effects
chronic fatigue dizziness 21 more
Total evaluations
2
Tried for
SUNCT syndrome (2)
Treatment name(s)

(Depakote)
Perceived effectiveness
No evaluations
Side effects
confusion in the mornings dry skin 2 more
Total evaluations
1
Tried for
SUNCT syndrome (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
fatigue sleepiness
Total evaluations
1
Tried for
pain (1) SUNCT syndrome (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for SUNCT syndrome (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
SUNCT syndrome (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
SUNCT syndrome (1)
Treatment name(s)

(Imitrex)
Perceived effectiveness
for SUNCT syndrome (1 evaluation)
Side effects
burning pain
Total evaluations
1
Tried for
SUNCT syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with SUNCT syndrome, who reported starting treatments within the last 5 years.
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Who has SUNCT syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 2
40s 5
50s 10
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 2
30-39 years 1
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 13

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 1

These charts show data from SUNCT syndrome patients who have completed their condition history
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