Osteopetrosis

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What is osteopetrosis?

Osteopetrosis is a bone disease characterized as increased bone density and brittle bones (prone to breakage).

Common symptoms reported by people with osteopetrosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with osteopetrosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Fosamax)
Type
Prescription Drug
How many have tried
1
Tried for
osteopetrosis (1)
Treatment name(s)

(Calcium 600 plus D)
Type
Supplement
How many have tried
1
Tried for
osteopetrosis (1)
Treatment name(s)

(Prolia)
Type
Prescription Drug
How many have tried
1
Tried for
osteopetrosis (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1) stress (1)
Treatment name(s)

(Serax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Nucynta)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Zometa)
Type
Prescription Drug
How many have tried
1
Tried for
osteopetrosis (1)

Data from patients with osteopetrosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with osteopetrosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Fosamax)
Perceived effectiveness
for osteopetrosis (2 evaluations)
Side effects
bone pain
Total evaluations
2
Tried for
osteopetrosis (1)
Treatment name(s)

(Calcium 600 plus D)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
osteopetrosis (1)
Treatment name(s)

(Prolia)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
osteopetrosis (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1) stress (1)
Treatment name(s)

(Serax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Nucynta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Zometa)
Perceived effectiveness
for osteopetrosis (1 evaluation)
Side effects
allergic reaction
Total evaluations
1
Tried for
osteopetrosis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with osteopetrosis, who reported starting treatments within the last 5 years.
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Who has osteopetrosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 1
30s 3
40s 13
50s 10
60s 12
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 2
30-39 years 3
40-49 years 4
50-59 years 4
60-69 years 0
70+ years 1

Sex

Distribution of sex

78% Female
22% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 20
Not Diagnosed 2

These charts show data from osteopetrosis patients who have completed their condition history
Last updated: