Neuromyelitis optica

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What is neuromyelitis optica?

Neuromyelitis optica (NMO), also known as Devic's disease, is an autoimmune, inflammatory disorder in which a person's own immune system attacks the optic nerves and spinal cord. This produces an inflammation of the optic nerve (optic neuritis) and the spinal cord (myelitis).

Common symptoms reported by people with neuromyelitis optica

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with neuromyelitis optica

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
15
Tried for
neuromyelitis optica (15)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
7
Tried for
neuromyelitis optica (7)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
6
Tried for
neuromyelitis optica (6)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
neuromyelitis optica (5) Pain (1)
Treatment name(s)
Type
Procedures
How many have tried
3
Tried for
neuromyelitis optica (3)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
3
Tried for
neuromyelitis optica (3)
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
2
Tried for
neuromyelitis optica (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)

Data from patients with neuromyelitis optica, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with neuromyelitis optica

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Rituxan)
Perceived effectiveness
for neuromyelitis optica (11 evaluations)
Side effects
fatigue allergies 5 more
Total evaluations
11
Tried for
neuromyelitis optica (15)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for neuromyelitis optica (3 evaluations)
Side effects
fatigue
Total evaluations
4
Treatment name(s)

(Imuran)
Perceived effectiveness
for neuromyelitis optica (2 evaluations)
Side effects
bone marrow suppression nausea if taken on empty stomach
Total evaluations
2
Tried for
neuromyelitis optica (7)
Treatment name(s)

(CellCept)
Perceived effectiveness
for neuromyelitis optica (1 evaluation)
Side effects
Total evaluations
1
Tried for
neuromyelitis optica (6)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for neuromyelitis optica (2 evaluations)
Side effects
chronic constipation sluggish cognitive tempo 1 more
Total evaluations
3
Tried for
neuromyelitis optica (5) Pain (1)
Treatment name(s)
Perceived effectiveness
for neuromyelitis optica (2 evaluations)
Side effects
chills during infusion fatigue 3 more
Total evaluations
2
Tried for
neuromyelitis optica (3)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for neuromyelitis optica (1 evaluation)
Side effects
blurry vision constant hunger 5 more
Total evaluations
1
Tried for
neuromyelitis optica (3)
Treatment name(s)

(Tegretol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
neuromyelitis optica (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
bowel problems constipation
Total evaluations
2
Tried for
Pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with neuromyelitis optica, who reported starting treatments within the last 5 years.
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Who has neuromyelitis optica on PatientsLikeMe?


Age
Age Proportion # of patients
<20 14
20s 30
30s 107
40s 157
50s 115
60s 70
70+ 25
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 25
20-29 years 59
30-39 years 87
40-49 years 57
50-59 years 38
60-69 years 11
70+ years 2

Sex

Distribution of sex

80% Female
20% Male

Types
Condition Types Proportion # of patients
Asian optic-spinal MS 9
Monophasic NMO 14
NMO spectrum disorder 65
Relapsing NMO 142
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 286
Not Diagnosed 55

These charts show data from NMO patients who have completed their condition history
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