Parry Romberg syndrome

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What is Parry Romberg syndrome?

Parry Romberg Syndrome is the atrophy or wasting away of the soft tissues of the face; it usually occurs on the left half of the face (hemifacial atrophy). Symptoms usually occur before the age of 20 years.

Common symptoms reported by people with Parry Romberg syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Parry Romberg syndrome

No data

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Compare treatments taken by people with Parry Romberg syndrome

No data

Let’s build this page together! When you share what it’s like to have Parry Romberg syndrome through your profile, those stories and data appear here too.

Got a question about living with Parry Romberg syndrome? Members in the forum might have the answers.

Who has Parry Romberg syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 3
40s 12
50s 5
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 2
30-39 years 0
40-49 years 2
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

85% Female
15% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 3

These charts show data from Parry Romberg syndrome patients who have completed their condition history
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