ASD (Autism Spectrum Disorder)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is ASD (Autism Spectrum Disorder)?

Autism spectrum disorders are neural development disorders characterized by impaired social interaction and communication, restricted and repetitive behavior, with varying developmental and intellectual disabilities. These signs begin before a child is three years old.

Common symptoms reported by people with ASD (Autism Spectrum Disorder)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with ASD (Autism Spectrum Disorder)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Home occupational therapy)
Type
Physical Therapy
How many have tried
18
Check to add this treatment to your profile
Treatment name(s)
Type
Physical Therapy
How many have tried
17
Check to add this treatment to your profile
Type
Lifestyle Modification
How many have tried
9
Check to add this treatment to your profile
Treatment name(s)

(Risperdal)
Type
Prescription Drug
How many have tried
7
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Tried for
Pain (4) Anxious mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
5
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (4)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (3) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
4
Tried for
Depressed mood (3) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
4
Tried for
Insomnia (4) Anxious mood (1)
1 more

Data from patients with ASD (Autism Spectrum Disorder), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with ASD (Autism Spectrum Disorder)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Home occupational therapy)
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (4 evaluations)
Side effects
Confusion Ritual or repeated behaviors 1 more
How many evaluations
4
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (1 evaluation)
Side effects
How many evaluations
1
Check to add this treatment to your profile
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (1 evaluation)
Side effects
How many evaluations
1
Check to add this treatment to your profile
Treatment name(s)

(Risperdal)
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (1 evaluation)
Side effects
How many evaluations
1
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (5 evaluations)
Side effects
Muscle and joint pain Nausea
How many evaluations
8
Tried for
Pain (4) Anxious mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Abilify)
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (3 evaluations)
Side effects
Agitation with restlessness Night sweats
How many evaluations
4
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Cognitive confusion Daytime sleepiness 1 more
How many evaluations
1
Tried for
Anxious mood (4)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Perceived effectiveness
for Anxious mood (3 evaluations)
Side effects
How many evaluations
3
Tried for
Anxious mood (3) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Lexapro)
Perceived effectiveness
for Depressed mood (5 evaluations)
Side effects
Chest pain with flushing/nausea Dizziness (vertigo) 4 more
How many evaluations
5
Tried for
Depressed mood (3) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Seroquel)
Perceived effectiveness
for Insomnia (2 evaluations)
Side effects
Drowsiness Nausea 1 more
How many evaluations
2
Tried for
Insomnia (4) Anxious mood (1)
1 more

Data from patients with ASD (Autism Spectrum Disorder), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has ASD (Autism Spectrum Disorder) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 289
20s 131
30s 145
40s 151
50s 72
60s 11
70+ 3

Sex

Distribution of sex

53% Female
47% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 274
20-29 years 14
30-39 years 11
40-49 years 3
50-59 years 1
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 392
Not Diagnosed 83

These charts show data from Autism patients who have completed their condition history
Last updated: