Morphea

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is morphea?

Morphea, also known as localized scleroderma, is a rare disorder characterized by excessive collagen deposition leading to thickening of the skin, subcutaneous tissues, or both. It is classified into plaque, generalized, linear, and deep subtypes.

Common symptoms reported by people with morphea


Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with morphea

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Cesamet)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Tried for
pain (1)

Data from patients with morphea, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with morphea

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Cesamet)
Perceived effectiveness
for pain (1 evaluation)
Side effects
migraine headaches tiredness
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with morphea, who reported starting treatments within the last 5 years.
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Who has morphea on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 8
30s 10
40s 7
50s 11
60s 11
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 5
30-39 years 4
40-49 years 1
50-59 years 2
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 48

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 29
Not Diagnosed 0

These charts show data from morphea patients who have completed their condition history
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