RLS (Restless Legs Syndrome)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is RLS (Restless Legs Syndrome)?

Restless legs syndrome (RLS) is a neurological disorder characterized by an unpleasant sensation in the legs and an urge to move them for relief; usually occurs during or just prior to sleep. RLS sensations may also be felt in the arms.

What is it like to have RLS (Restless Legs Syndrome)?

Common symptoms How bad it is What people are taking for it
Clonazepam, Alprazolam, Lorazepam
Tramadol, Hydrocodone-Acetaminophen, Gabapentin
Duloxetine, Bupropion, Citalopram
Modafinil, Amphetamine-Dextroamphetamine, Rest
Trazodone, Amitriptyline, Zolpidem

What do patients take to treat RLS (Restless Legs Syndrome) and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Requip LP, Requip Prolib, Requip Depot, Requip)


(Premipex, Pexola, Teva pramipexole, Mirapexin)


(Clonotril, APO Clonazepam, Rivotril drops, Klonopin)


(APO-Gabapentin, PMS-Gabapentin, Gralise, DOM-Gabapentin)


(Co-careldopa, Sinemet 25/100, Sinemet ER 50/200, Sinemet 25/250)


(Neupro Patch)


These charts show data from Restless Legs patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has RLS (Restless Legs Syndrome) on PatientsLikeMe?

  • 1,697 patients have this condition
  • 12 new patients joined this month
  • 201 say Restless Legs is their primary condition

Age Proportion # of patients
<20 11
20s 94
30s 257
40s 475
50s 538
60s 203
70+ 56


Distribution of females vs. males

85% Females
15% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 206
20-29 years 181
30-39 years 262
40-49 years 254
50-59 years 106
60-69 years 16
70+ years 8

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,053
Not Diagnosed 197

These charts show data from Restless Legs patients who have completed their condition history
Last updated: