Hypogammaglobulinemia

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What is hypogammaglobulinemia?

Hypogammaglobulinemia is an immune disorder characterized by a reduction in all types of gamma globulins, including antibodies that help fight infection. It may be congenital (present at birth), related to medication; it may be due to a kidney or gastrointestinal condition, cancer or severe burns.

Common symptoms reported by people with hypogammaglobulinemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hypogammaglobulinemia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
33
Tried for
hypogammaglobulinemia (33)
Treatment name(s)

(Hizentra)
Type
Prescription Drug
How many have tried
4
Tried for
hypogammaglobulinemia (4)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
2
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2) anxious mood (1)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)

Data from patients with hypogammaglobulinemia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hypogammaglobulinemia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for hypogammaglobulinemia (32 evaluations)
Side effects
headaches migraine headaches 22 more
Total evaluations
32
Tried for
hypogammaglobulinemia (33)
Treatment name(s)

(Hizentra)
Perceived effectiveness
for hypogammaglobulinemia (8 evaluations)
Side effects
chills injection site redness 5 more
Total evaluations
8
Tried for
hypogammaglobulinemia (4)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (3)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
tiredness
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (7 evaluations)
Side effects
drowsiness
Total evaluations
8
Tried for
anxious mood (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (2) anxious mood (1)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
for pain (1 evaluation)
Side effects
sleepiness
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for pain (2 evaluations)
Side effects
accidental overdose cognitive impairment 1 more
Total evaluations
2
Tried for
pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hypogammaglobulinemia, who reported starting treatments within the last 5 years.
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Who has hypogammaglobulinemia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 23
20s 17
30s 49
40s 88
50s 162
60s 104
70+ 35
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 65
20-29 years 13
30-39 years 29
40-49 years 32
50-59 years 27
60-69 years 8
70+ years 3

Sex

Distribution of sex

83% Female
17% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 228
Not Diagnosed 6

These charts show data from hypogammaglobulinemia patients who have completed their condition history
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