What is Pentosan polysulfate sodium?

Category: Prescription Drugs

Most popular types: Elmiron

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Pentosan polysulfate sodium is an analgesic medication that is used to relieve bladder pain or discomfort due to interstitial cystitis.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Interstitial Cystitis 92 39
Bladder problems 6 4
Urinary burning 3 3
Eosinophilic cystitis 1 0
Frequent urination 1 0
Pelvic pain 1 0

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 4
Moderate 8
Mild 8
None 21

Commonly reported side effects and conditions associated with Pentosan polysulfate sodium

Side effect Patients
Hair loss 3
Nausea 2
Alopecia 1
Chronic constipation 1
Constipation 1
Diarrhea 1

Show all 13 reported side effects

Dosages

Based on patients currently taking Pentosan polysulfate sodium

Dosage Patients
100 mg three times daily 5
300 mg daily 3
200 mg twice daily 3
400 mg daily 2
200 mg daily 1
100mg as needed 1

Why patients stopped taking Pentosan polysulfate sodium

Multiple reasons could be selected

Reason Patients
Did not seem to work 14
Side effects too severe 10
Expense 6
Other 4
Change in health plan coverage 3
Course of treatment ended 3
Doctor's advice 3
Personal research 1
See all 29 patients who’ve stopped taking Pentosan polysulfate sodium

Duration

Currently taking Pentosan polysulfate sodium

Duration Patients
Less than 1 month 1
2 - 5 years 8
5 - 10 years 2
10 years or more 3

Stopped taking Pentosan polysulfate sodium

Duration Patients
Less than 1 month 3
1 - 6 months 5
6 months - 1 year 6
1 - 2 years 7
2 - 5 years 4
5 - 10 years 4
Adherence
Adherence Evaluations
Always 29
Usually 10
Sometimes 1
Never taken as prescribed 1
Burden
Burden Evaluations
Very hard to take 4
Somewhat hard to take 5
A little hard to take 11
Not at all hard to take 21
Cost per month
Cost per month Evaluations
$200+ 3
$100-199 4
$50-99 2
$25-49 3
< $25 8
Not specified 21

What people switch to and from

Patients stopped taking Pentosan polysulfate sodium and switched to:

Treatment Patients
Uribel 1
Last updated:

1 patient evaluation for Pentosan polysulfate sodium

34 members have decided to share their profiles only with other members of PatientsLikeMe.

fightingfibro
16580 thumb
fightingfibro
Gender: F
Data Quality: 0 stars
Pain: Some
Fatigue: Most
Sleep: Some
Stiffness: Most
function: Most
external_stress: Little
Stickman: most
Description:F42y
FM:13y Dx
CFS:?y
I am: n
I have:
Fibromyalgia

See fightingfibro's full Pentosan polysulfate sodium history

Mar 8, 2010 (Started Nov 04, 2009)

  • Effectiveness
    None (for Interstitial Cystitis)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: This is a trial drug and the only FDA approved for IC.A lot of doctors don't even know how to treat IC,unless you go to a specialist.The elmiron is also a blood thinner.It made me very sick.

  • 0 helpful marks
Last updated:
Showing 1 of 1 patient evaluation for Pentosan polysulfate sodium