What is Pentosan polysulfate sodium?

Category: Prescription Drugs

Most popular types: Elmiron

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Pentosan polysulfate sodium is an analgesic medication that is used to relieve bladder pain or discomfort due to interstitial cystitis.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Interstitial cystitis 98 46
Bladder problems 7 8
Urinary burning pain 3 5
Eosinophilic cystitis 1 1
Frequent urination 1 0

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 7
Moderate 10
Mild 9
None 24

Commonly reported side effects and conditions associated with Pentosan polysulfate sodium

Side effect Patients
Hair loss 6
Nausea 3
Diarrhea 2
Alopecia 1
Chronic constipation 1
Constipation 1

Show all 14 reported side effects

Dosages

Based on patients currently taking Pentosan polysulfate sodium

Dosage Patients
100 mg three times daily 3
300 mg daily 3
100 mg daily 2
200 mg twice daily 2
200 mg daily 1
400 mg twice daily 1
10,000 mg three times daily 1
100mg as needed 1

Why patients stopped taking Pentosan polysulfate sodium

Multiple reasons could be selected

Reason Patients
Did not seem to work 14
Side effects too severe 10
Expense 8
Change in health plan coverage 4
Other 4
Course of treatment ended 3
Doctor's advice 3
Personal research 1
See all 30 patients who've stopped taking Pentosan polysulfate sodium

Duration

Currently taking Pentosan polysulfate sodium

Duration Patients
Less than 1 month 1
1 - 6 months 1
1 - 2 years 2
2 - 5 years 3
5 - 10 years 3
10 years or more 3

Stopped taking Pentosan polysulfate sodium

Duration Patients
Less than 1 month 3
1 - 6 months 5
6 months - 1 year 6
1 - 2 years 8
2 - 5 years 4
5 - 10 years 4
10 years or more 1
Adherence
Adherence Evaluations
Always 35
Usually 13
Sometimes 1
Never taken as prescribed 1
Burden
Burden Evaluations
Very hard to take 6
Somewhat hard to take 7
A little hard to take 12
Not at all hard to take 25
Cost per month
Cost per month Evaluations
$200+ 4
$100-199 6
$50-99 2
$25-49 6
< $25 9
Not specified 23

What people switch to and from

Patients stopped taking Pentosan polysulfate sodium and switched to:

Treatment Patients
Hyoscyamine sulfate-methenamine-methylene blue-phenyl salicylate-sodium phosphate monobasic (Uribel) 1
Last updated:

1 patient evaluation for Pentosan polysulfate sodium

Mar 8, 2010 (Started Nov 04, 2009)

  • Effectiveness
    None (for interstitial cystitis)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: This is a trial drug and the only FDA approved for IC.A lot of doctors don't even know how to treat IC,unless you go to a specialist.The elmiron is also a blood thinner.It made me very sick.

  • 0 helpful marks
Last updated:
Showing 1 of 1 patient evaluation for Pentosan polysulfate sodium