Oct 24, 2009 (Started Jul 01, 2008)

  • Effectiveness
    Major (for Participate in clinical trial)
  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 300 mg Daily
Advice & Tips: This Clinical Trial is to evaluate the tolerabiltiy and effectiveness of an investigational drug. Initially a double blind placebo-controlled study, the research is now in an open-label phase where I know I am taking the active compound. The research results are not yet known . Personally I can't tell if it has slowed the progression of symptoms since I have never had ALS before! The burden of this treatment involves traveling over 100 miles every month or two to the research site, for EKG, blood work, urinalysis, two spinal taps, physical exams, medication logs,and other requirements of the research protocol.
Cost: < $25 monthly

  • 4 helpful marks