Mar 15, 2016 (Started Sep 10, 2014)

  • Effectiveness
    None (for Improve mobility)
  • Effectiveness
    None (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: I am not currently taking Apokyn as, due to the success of our informal trial using hypnotherapy, it has not been necessary. I am not sure how to record this on the site. Hypnotherapy is a private treatment in UK & costs £35 per session weekly
Cost: $200+ monthly

Oct 28, 2015 (Started Sep 10, 2014)

  • Effectiveness
    Major (for Improve mobility)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: Until September 13th my condition was deteriorating re freezing so that for some time I needed 4-5 injections a day & was recommended to start using the pump. A hypnotherapy programme to address freezing was initiated & from a few days in I have not had an injection ie from 20th September.

Aug 21, 2015 (Started Sep 10, 2014)

  • Effectiveness
    Major (for Improve mobility)
  • Effectiveness
    None (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (injection site bruising)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed

May 31, 2015 (Started Sep 10, 2014)

  • Effectiveness
    Major (for Improve mobility)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed

May 5, 2015 (Started Sep 10, 2014)

  • Effectiveness
    Major (for Improve mobility)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed

Apr 13, 2015 (Started Sep 10, 2014)

  • Effectiveness
    Moderate (for Improve mobility)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed

Mar 19, 2015 (Started Sep 10, 2014)

  • Effectiveness
    Major (for Improve mobility)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: For 9 consecutive days I only need 4 injections in total. After that the freezing & internal tremor returned, though not so frequently with resulting increase of injections.

Mar 4, 2015 (Started Sep 10, 2014)

  • Effectiveness
    Moderate (for Improve mobility)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: I have only had 4 injections in the last 9 days. I'm not sure why but my overall condition seems to have benefited from Apokyn - not just the freezing.

Jan 19, 2015 (Started Sep 10, 2014)

  • Effectiveness
    Moderate (for Improve mobility)
  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: I think that I have needed to use the injections less than I planned for almost like an umbrella keeps away the rain. It is an effective prop.
  • 1 helpful mark