2 patient evaluations for Pirfenidone

Dec 15, 2017 (Started Feb 06, 2016)

  • Effectiveness
    None (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (constant hunger, shortness of breath with exertion, cough)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

May 23, 2017 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (constant hunger, shortness of breath with exertion, cough)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

Feb 3, 2017 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (constant hunger, shortness of breath with exertion, cough)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

Jan 28, 2017 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (constant hunger, shortness of breath with exertion, cough)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

Sep 29, 2016 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (constant hunger, shortness of breath with exertion, cough)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Advice & Tips: Set my fitness tracker to remind me to take pills. Usually half a bananna is enough food for me to take the pills in the morning
Cost: < $25 monthly

Jul 24, 2016 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Moderate (constant hunger, shortness of breath with exertion, cough)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

Feb 20, 2016 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (constant hunger, shortness of breath with exertion, cough)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Advice & Tips: I sent my fitness tracker to remind to take
Cost: < $25 monthly

  • 1 helpful mark

May 27, 2015 (Started Nov 11, 2012)

  • Effectiveness
    Moderate (for idiopathic pulmonary fibrosis)
  • Side effects
    Moderate (exhaustion)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 200 mg Daily
Advice & Tips: Now I take Pirfenidone 200 mg x10 tablets a day as my fibrosis spread to lower part of lung after 10 years . It started from lower part of left lung .
Cost: $200+ monthly

Oct 13, 2014 (Started Nov 11, 2012)

  • Effectiveness
    Major (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (exhaustion)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 4 mg Daily
Cost: $200+ monthly

Nov 26, 2013 (Started Nov 11, 2012)

  • Effectiveness
    Major (for idiopathic pulmonary fibrosis)
  • Side effects
    Moderate (exhaustion)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 mg Daily
Advice & Tips: I started with 2 tablets a day . I had headache after 10 days . I stopped for 4 days I started again. After 3 week I started 4 tablets a day . I started feeling of tiredness . I had headache after 15 days . I stopped for 3 days I started again 4 tablets . I reached level of 8 tablets with in 3 months . I do checking of liver / renal / lipid profile and RBC count every quarter . All parameters of above test gone up high in last 8 months in comparatively before start of pirfenidone . As per my medical doctor they are in safe limits.my oxygen level after 6 mts walk improved in 9 months .my Fvc is now 74 percent which was 57 percent in year 2010 .i take nutrients like nano curcumin / dry ginger / basil extract tablets and alpha lipolic acid tablets .i take 2 tablets of rabeperazole as anti acid for reflux
Cost: $200+ monthly

  • 3 helpful marks
Last updated:
Showing 2 of 2 patient evaluations for Pirfenidone