1 patient evaluation for Fampridine (4-AP immediate release)

Feb 5, 2011 (Started Aug 01, 2007)

  • Effectiveness
    Major (for Other)
  • Side effects
    Mild (irritation in back of throat)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: The study is now over...and the drug has been renamed Ampyra. During the week between the end of the study and when I received my first "real" prescription, I had no drug...within 3 days, I was having real trouble walking, and/or lifting my feel to get in car, etc. This may or may not have had to do with the Ampyra...at that time my BIL, who had just been diagnosed with ALS was visiting and I was pretty upset, but trying not to show it. After I re-started the drug, within 2-3 days my walking was MUCH better, although, that was in early Aug. 2010 and I am now definitely a wall-walker, and even must use my cane in the house a lot. Getting up and down the stairs is becoming a real chore.
Cost: < $25 monthly
Side effects: irritation in back of throat

Jun 25, 2010 (Started Aug 01, 2007)

  • Effectiveness
    Slight (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: Don't really notice a difference...but when I take timed walking tests, my speed is always the same or a little faster...unless I'm having a "bad" day. I haven't really noticed much difference, but dont' want to quit unless I can't afford it. I was in trials and have been getting drug free, but might have to pay $1000 a month starting soon, as it was just approved by FDA...If so, will definitely quit!
Side effects: irritation in back of throat

Jan 12, 2009 (Started Aug 01, 2007)

  • Effectiveness
    None (for Other)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: Not sure this is really doing anything much for me. I'm participating in a study.
Side effects: irritation in back of throat

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Showing 1 of 1 patient evaluation for Fampridine (4-AP immediate release)