Data for good

Your data can change lives. Here's how.

People like you share health data

We turn that into data points about disease

and look for new insights

We share what we've learned with you

and with industry to improve treatments for you

What is data for good?

It’s symptom, treatment and other health data that you choose to share on PatientsLikeMe. All that data helps you track how you’re doing over time, helps the next person diagnosed learn what could work for them, and tells researchers what people really need so they can develop more effective treatments, faster.

We’re more than our disease. Together, we are the answer.

As a member, you have lots of opportunity to get in on data for good. Here’s what you can do today:

  • Share your experience with symptoms and treatments. Or simply tell us how you’re feeling. You’ll help researchers understand more about what patients are experiencing every day.
  • Lend your voice on important issues, like how to fight stigma, or what should be in an affordable healthcare plan. The forum is where you can find like minds, and a lot of support.
  • Become a pioneer in our most innovative research to date. You’ll learn about how DNA, biology and experience all contribute to health, disease and aging.


Here are some answers about how PatientsLikeMe works, and how we do research.

Visit our Research FAQs

I feel very excited that the information being used from my situation will contribute to research to help other people. Without that data, the research will not continue to grow.

Letitia, member with epilepsy, joined in 2010