Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Sex: M
Data Quality: 2 stars
ALS: 20 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Danny Dandignac Male, 58 years Leander, TX First Symptom: 03/97
Dx: 12/00
Sex: M
Data Quality: 1 star
ALS: 6 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Jeffrey Repetto Male, 45 years Culver City, CA First Symptom: 01/03
Dx: 08/03
Sex: M
Data Quality: 2 stars
ALS: 9 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Stephen Heywood Male, 37 years Newton, MA First Symptom: 11/97
Dx: 12/98