Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
tbs117
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: mild
Tommy Sims Male, 55 years AL, United States First Symptom: 05/14
Dx: 05/14
deangmo
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bi-Pap
Bulbar: none
Arms: moderate
Chest: mild
Legs: mild
Dean Tuttle Male, 57 years MI, United States First Symptom: 07/13
Dx: 12/15
Criss02
Sex: F
Data Quality: 2 stars
ALS: 4 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Female, 66 years Saint Cloud, FL First Symptom: 07/13
Dx: 05/14
mbond0623
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Michael B Male, 64 years PA, United States First Symptom: 11/14
Dx: 11/15
LeoGorenstein1944
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
Male, 73 years Chicago, IL First Symptom: 02/13
Dx: 10/15
Bruns400
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Female, 52 years Brunswick, OH First Symptom: 05/15
Dx: 12/15
Sallaf
Sex: M
Data Quality: 1 star
ALS: ? yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Dallas Vetter Male, 55 years Wilmington, NC Dx: 06/15
newtons1971
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Tom Farrell Male, 64 years Raymond, NH First Symptom: 06/13
Dx: 09/15
Hillery
Sex: F
Data Quality: 1 star
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Pam Hillery Female, 57 years Havre, MT First Symptom: 02/12
Dx: 07/13
Jimmy1961
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Jim Hashman Male, 56 years WA, United States First Symptom: 12/12
Dx: 05/13
Melodysue
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Melody Joerding Female, 69 years OR, United States First Symptom: 01/15
Dx: 05/15
twitasista
Sex: F
Data Quality: 2 stars
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: none
Chest: moderate
Legs: mild
Lesley Brooks Female, 59 years BC, Canada First Symptom: 03/14
Dx: 03/15
jonby
Sex: M
Data Quality: 2 stars
PLS: 26 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Jon Howe Male, 52 years Snohomish, WA First Symptom: 05/91
Dx: 03/17
jennyinfrance
Sex: F
Data Quality: 2 stars
ALS: 4 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: none
Chest: moderate
Legs: none
Jenny Dean Female, 65 years Correze, France First Symptom: 02/13
Dx: 06/13
KennyALS
Sex: M
Data Quality: 2 stars
ALS: 5 yrs
Ventilator Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: moderate
Male, 70 years MO, United States First Symptom: 10/11
Dx: 06/12
jleeb
Sex: M
Data Quality: 2 stars
ALS: 5 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: severe
Male, 60 years NC, United States First Symptom: 06/12
Dx: 06/13
kthemmerling
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
trina hemmmerling Female, 40 years OK, United States First Symptom: 04/13
Dx: 12/14
eagleman68
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: mild
Leslie Rodgers Jr Male, 67 years Middleburg, FL First Symptom: 03/10
Dx: 10/10
Cookieman717
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bulbar: severe
Arms: moderate
Chest: none
Legs: mild
Frank C Houseman Male, 66 years Wrightsville, PA First Symptom: 07/14
Dx: 01/15
gigitommie
Sex: F
Data Quality: 2 stars
ALS: 10 yrs
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Tommie Farley Female, 49 years Rector, AR First Symptom: 07/07
Dx: 09/08