Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
CHOCOLATE SHAKE
Sex: F
Data Quality: 0 stars
PMA: 12 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: mild
MARVEL WAGNER Female, 69 years OSHKOSH, WI First Symptom: 09/05
Dx: 10/07
ava
Sex: F
Data Quality: 1 star
ALS: 20 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
LUCY WAX Female, 74 years BROOKLYN, NY First Symptom: 01/97
Dx: 04/99
JoAnn44
Sex: F
Data Quality: 1 star
ALS: 7 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
JO ANN WHITMAN Female, 66 years Grand Junction Co., CO First Symptom: 08/10
Dx: 01/11
cwilkins39
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
CARL WILKINS Male, 86 years Lumberton, NC First Symptom: 10/04
Dx: 01/07
HKRDGbaby
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Leyhe Wade Female, 62 years Oxford, NC First Symptom: 09/02
Dx: 12/03
brendaw8
Sex: F
Data Quality: 0 stars
ALS: 25 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Brenda Waite Female, 44 years Bakersfield, CA First Symptom: 03/92
Dx: 08/93
goodfortune
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Marilee Wald Female, 68 years bismarck, ND First Symptom: 12/07
Dx: 06/08
KAREN W
Sex: F
Data Quality: 1 star
PMA: 12 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: severe
Karen Walker Female, 63 years Cobham, Surrey, United Kingdom First Symptom: 06/05
Dx: 10/06
Scamper
Sex: F
Data Quality: 2 stars
ALS: 9 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: none
Legs: severe
Dee Wallace Female, 74 years Santa Rosa, CA First Symptom: 03/08
Dx: 09/09
guppy
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Nicole Wallis Female, 43 years Melbourne, VIC First Symptom: 08/06
Dx: 03/07
7bjw29
Sex: M
Data Quality: 1 star
ALS: 8 yrs
Feeding tube
Bulbar: severe
Arms: mild
Chest: mild
Legs: mild
Brian Warf Male, 69 years Bend, OR First Symptom: 07/09
Dx: 11/09
SBDillon
Sex: M
Data Quality: 2 stars
ALS: 6 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Bobby Warner JR Male, 38 years Akron , OH First Symptom: 07/11
Dx: 10/11
fuzzy
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Rick Warrick Male, 56 years Springfield, IL First Symptom: 11/05
Dx: 01/07
AnWaters
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Anne Waters Female, 54 years Cleveland, OH First Symptom: 01/05
cbwaters
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Carolyn Waters Female, 70 years Torrance, CA First Symptom: 08/04
Dx: 01/05
beltaneman
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Gary Watkins Male, 69 years Elverta, CA First Symptom: 05/07
Dx: 07/07
AcesHigh
Sex: M
Data Quality: 2 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
Johnny Watson Male, 27 years CA, United States First Symptom: 02/08
Dx: 12/08
williedog
Sex: M
Data Quality: 1 star
ALS: 8 yrs
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Tim Watson Male, 59 years Newton, NC First Symptom: 11/08
Dx: 12/09
thumper51
Sex: M
Data Quality: 1 star
ALS: 8 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Tim Watson Male, 58 years NEWTON, NC First Symptom: 01/09
Dx: 01/09
stevenwatters
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap
Bulbar: mild
Arms: none
Chest: mild
Legs: none
Steven Watters Male, 55 years Lufkin, TX First Symptom: 01/09
Dx: 07/09