Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Koendv
Sex: M
Data Quality: 1 star
PMA: 11 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Koen De Vleeschauwer Male, 64 years Mortsel, Antwerpen First Symptom: 01/06
Dx: 01/08
JAVALE30
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
Joe Valenzuela Male, 44 years FRESNO, CA First Symptom: 04/06
Dx: 11/06
Nadine Barbara
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Nadine Vallon Auderset Female, 45 years Yverdon-les-Bains, Switzerland First Symptom: 05/07
Dx: 02/08
ENV
Sex: M
Data Quality: 0 stars
PMA: 13 yrs
Ventilator Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Eric Valor Male, 49 years United States First Symptom: 05/04
Dx: 04/05
Paulv5
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: severe
Paul Van Dellen Male, 89 years glendale, CA First Symptom: 09/08
Dx: 07/09
spider
Sex: M
Data Quality: 0 stars
ALS: 17 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
Rennie Van Rensburg Male, 61 years Potchefstroom, North-West First Symptom: 08/00
Dx: 08/01
daddy
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
clyde Vance Male, 55 years holden, WV First Symptom: 12/05
Dx: 01/08
IriaVargas
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: none
Iria Vargas Female, 61 years Pawtucket, RI First Symptom: 07/06
Dx: 02/07
chwid
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Carlton Varner Male, 61 years Pasadena, CA First Symptom: 09/07
Dx: 03/08
BELLAITALIA
Sex: F
Data Quality: 0 stars
ALS: <1 yr
Bi-Pap
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Jennifer Vattuone Female, 30 years San Diego, CA First Symptom: 02/06
Dx: 07/06
Lee
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Feeding tube
Bulbar: severe
Arms: mild
Chest: mild
Legs: mild
Lee Vaughn Male, 75 years Renton, WA First Symptom: 06/04
Dx: 05/05
Sallaf
Sex: M
Data Quality: 1 star
ALS: ? yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Dallas Vetter Male, 55 years Wilmington, NC Dx: 06/15
bvin
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Bobby Vincent Male, 48 years Tomball, TX First Symptom: 09/03
Dx: 06/06
Serge J V
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
Serge J Vincent Male, 63 years Sacre-Coeur, Quebec, Canada First Symptom: 03/05
Dx: 03/06
PALS888
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Wheelchair
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
David Virden Male, 58 years Manchester, MA First Symptom: 08/06
Dx: 10/06
Snowmanzx
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: moderate
Larry Vokes Male, 47 years ON, Canada First Symptom: 01/08
Dx: 08/08
lin
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
Linda Zijtveld van Female, 49 years Harderwijk, Netherlands First Symptom: 06/02
Dx: 08/05
helpfull
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
claude valentine Male, 76 years columbia, NJ First Symptom: 01/05
Dx: 10/08
JanNL
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: moderate
Jan van Atten Male, 75 years Rotterdam, Netherlands First Symptom: 08/95
Dx: 01/98
hemst
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Henk van Emst Male, 55 years Valthe, Drenthe First Symptom: 06/07
Dx: 09/08