Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
wmbsr1
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
William M. Blough, Sr. Male, 66 years Denham Springs, LA First Symptom: 04/03
Dx: 02/04
Joe College Sr.
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
Joseph College Sr. Male, 56 years Frederick, MD First Symptom: 11/08
Dx: 01/09
pingzing
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: moderate
Legs: moderate
Michael De Stasio First Symptom: 03/08
Dx: 08/08
TOM FLICKINGER SR
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
TOM FLICKINGER SR Male, 57 years MAYS LANDING, NJ First Symptom: 02/06
Dx: 10/06
Ron
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: mild
Ronald Foulks Sr. Male, 70 years Florissant, MO First Symptom: 08/05
Dx: 07/06
riley1
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Patricia Gillman-Smith Female, 71 years Holt, MI First Symptom: 06/05
Dx: 12/06
N33N54
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
noreen O'shea/stratton Female, 62 years GULF SHORES, AL First Symptom: 05/07
Dx: 10/09
KenSr
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Ken Patterson Sr Male, 44 years Titusville, FL First Symptom: 02/06
Dx: 11/06
dennyauto
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Jon S Male, 60 years First Symptom: 06/10
Dx: 10/10
sanscott
Sex: F
Data Quality: 0 stars
ALS: 16 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
SANDRA SCOTT Female, 67 years PORTAGE LA PRAIRIE , MB First Symptom: 09/01
Dx: 04/04
smith48327
Sex: M
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
WESLEY SMITH Male, 63 years WATERFORD , MI First Symptom: 01/02
Dx: 09/02
jessluke
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: moderate
Legs: mild
ralph SNIDOW First Symptom: 09/05
Dx: 11/08
CURTO
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
CURT SUNDQUIST Male, 50 years CHICAGO, IL First Symptom: 09/04
Dx: 03/05
WORSTNIGHTMARE
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
RASA SZEPELAK member since
alsadler
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Lorraine Sadler Female, 66 years United States First Symptom: 03/11
Dx: 10/11
Painter Lady
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: severe
Vicki Sager Female, 62 years Daphne, AL First Symptom: 02/07
Dx: 09/07
dhstrailer
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Arlene Salas Female, 76 years West Covina, CA First Symptom: 11/05
Dx: 06/07
SmoothS
Sex: M
Data Quality: 2 stars
ALS: 12 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: none
Legs: severe
Steve Saling Male, 49 years Chelsea (Boston), MA First Symptom: 09/05
Dx: 10/06
GrayCat
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Steve Sall Male, 68 years Beaverton, OR First Symptom: 06/07
Dx: 10/07
sollyme
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Frederick Salomon member since