Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
osvaldirde
Sex: M
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
OSVALDIR DE LIMA DOS PASSOS Male, 53 years RIBEIRÃO PIRES, SÃO PAULO First Symptom: 10/01
Dx: 12/02
smoothlines
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
John Da Ponte Male, 47 years QC, Canada First Symptom: 02/08
Dx: 03/09
GAYLE PARROTT
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
GAYLE PARROTT Female, 56 years HERMANTOWN, MN First Symptom: 10/04
Dx: 02/06
piantedosi1034
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
RONALD PAYNE Male, 83 years WATERTOWN, MA First Symptom: 02/06
Dx: 06/08
evene
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
GARY PEEK Male, 58 years Brisbane, QLD First Symptom: 08/07
Dx: 08/10
INHISGRIP
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
CHRIS PICKENS member since
dpathome
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
DOUG PINTER member since
eleftherp
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
ELEFTHERIOS PRIFTIS Male, 40 years CORFU, Greece First Symptom: 04/07
Dx: 08/07
lincoln
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Alan Page Male, 61 years chester, IL First Symptom: 03/07
Dx: 11/07
austynmaison
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Melissa Page Female, 40 years muskegon, MI First Symptom: 02/06
Dx: 12/06
dpalko
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Dusan Palko Male, 64 years Velke Kapusany, Slovakia First Symptom: 03/08
Dx: 06/08
Magacopa
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Marilyn Palmer Female, 70 years Portland , OR First Symptom: 02/10
Dx: 08/12
Pythagoras
Sex: F
Data Quality: 0 stars
ALS: 17 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Annie & Tony Papoulias Female, 60 years Samos Island, Greece First Symptom: 01/00
Dx: 05/01
beer
Sex: M
Data Quality: 0 stars
ALS: 27 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Verne Paradie Male, 64 years Hartford, ME First Symptom: 06/90
Dx: 05/05
VivekP
Data Quality: 0 stars
ALS: 20 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Vivek Parashar First Symptom: 01/97
Dx: 04/05
rymen
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Rumen Parashkevov member since
ALSJune
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap
Bulbar: none
Arms: mild
Chest: mild
Legs: mild
Remy Pardoe Female, 58 years Lords Valley, PA First Symptom: 08/06
Dx: 01/07
bigdad122
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
Kent Parker Male, 43 years indianapolis, IN First Symptom: 06/06
Dx: 12/06
SParker
Sex: F
Data Quality: 2 stars
ALS: 9 yrs
Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: none
Legs: severe
Sharon Parker Female, 61 years Pembroke, GA First Symptom: 06/08
Dx: 10/08
GeorgeOParker
Sex: M
Data Quality: 0 stars
ALS: 29 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
George Parker Male, 76 years El Paso , TX First Symptom: 06/88
Dx: 10/88