Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
ltbeauti
Sex: F
Data Quality: 3 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Lisa Davis Female, 54 years Richmond, VA First Symptom: 11/04
Dx: 04/08
Merlin12
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
Steve Davis Male, 53 years Sandy, UT First Symptom: 08/08
Dx: 08/09
Tank55
Sex: M
Data Quality: 0 stars
ALS: 14 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Ted Davis Male, 61 years UT, United States First Symptom: 01/03
Dx: 08/03
Troy_D
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Troy Davis Male, 56 years WA, United States First Symptom: 03/16
Dx: 04/16
Daytripper371
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Charles Day Male, 49 years Gilbert, AZ First Symptom: 10/04
Dx: 07/05
mdlfv
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Maximo De Leon member since
pingzing
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: moderate
Legs: moderate
Michael De Stasio First Symptom: 03/08
Dx: 08/08
Koendv
Sex: M
Data Quality: 1 star
PMA: 11 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Koen De Vleeschauwer Male, 64 years Mortsel, Antwerpen First Symptom: 01/06
Dx: 01/08
washeba
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
Dianne DeCarlo Female, 71 years Springhill, FL First Symptom: 11/06
Dx: 04/07
jennyinfrance
Sex: F
Data Quality: 2 stars
ALS: 4 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: none
Chest: moderate
Legs: none
Jenny Dean Female, 64 years Correze, France First Symptom: 02/13
Dx: 06/13
tomvicded
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Thomas Dedman Male, 63 years AR, United States First Symptom: 08/08
Dx: 01/09
Muddling
Sex: F
Data Quality: 2 stars
ALS: 6 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Carol Degenstein Female, 72 years Globe, AZ First Symptom: 04/04
Dx: 04/07
KENN
Data Quality: 0 stars
ALS: 17 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Ken Del Carlo 70 years Santa Rosa, Ca., CA First Symptom: 08/99
Dx: 03/03
runningmum7
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap
Bulbar: none
Arms: none
Chest: none
Legs: mild
Teresa Del Negro Female, 54 years FL, United States First Symptom: 07/14
Dx: 12/14
Cricketjbs
Sex: F
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Jane Delaney Female, 70 years Frostburg, MD First Symptom: 11/09
Dx: 07/10
wdennis
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
William Dennis 73 years Rochester, NY First Symptom: 04/05
Dx: 04/06
Blockdog
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Dave Deutsch member since
phd.joy
Sex: M
Data Quality: 1 star
ALS: 9 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Peter Devin Male, 60 years CA, United States First Symptom: 01/08
Dx: 09/09
pdevin
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Peter Devin Male, 59 years CA, United States First Symptom: 09/08
Dx: 09/09
karendinardo
Sex: F
Data Quality: 1 star
ALS: 8 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Karen Di Nardo Female, 79 years East Rutherford, NJ First Symptom: 03/09
Dx: 04/11