Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
mbond0623
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Michael B Male, 64 years PA, United States First Symptom: 11/14
Dx: 11/15
ian
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
IAN BELL Male, 59 years buderim, QLD member since
markbennett
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: mild
Legs: severe
MARK BENNETT Male, 39 years GREYTOWN, New Zealand First Symptom: 12/04
Dx: 07/05
FMB
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
FRED BERGER Male, 55 years Morganville, NJ First Symptom: 06/07
Dx: 10/07
kip
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: mild
Legs: severe
CHRIS(KIP) BLOMQUIST Male, 46 years Cambridge, MN First Symptom: 08/07
Dx: 10/07
TAMMY B
Sex: F
Data Quality: 1 star
ALS: 5 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
TAMMY BROWN Female, 37 years Batesville, AR First Symptom: 05/04
Dx: 12/04
pitsbacon
Sex: F
Data Quality: 1 star
ALS: 9 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
Patsy Bacon Female, 66 years Vancouver, WA First Symptom: 04/08
Dx: 01/10
grocerman61
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Lee Badger Male, 70 years Logan, UT First Symptom: 04/08
Dx: 07/08
Svetlio
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Svetlozar Bahchevanov Male, 61 years Sofia, Sofia First Symptom: 01/08
Dx: 05/08
taxedbyals
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: mild
Legs: severe
Kevin Bailey Male, 41 years Vero Beach, FL First Symptom: 04/02
Dx: 10/02
raymoreConnie
Sex: F
Data Quality: 2 stars
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
Co Baker Female, 62 years Raymore, MO First Symptom: 07/04
Dx: 10/06
TipaCow
Sex: F
Data Quality: 2 stars
ALS: 21 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Dale Baker Female, 69 years Magalia, CA First Symptom: 02/96
Dx: 01/97
donaldgbaker
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Donald Baker First Symptom: 01/09
Dx: 08/09
mickey2595
Sex: M
Data Quality: 0 stars
ALS: 17 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Michael Baker Male, 70 years Cardiff , United Kingdom First Symptom: 10/99
Dx: 10/00
mrclean
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
Peter Bakker Male, 64 years Krommenie, Netherlands First Symptom: 03/07
Dx: 10/07
Mohamed
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Mohamed Bakr member since
kathyscat49
Sex: F
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
Kathy Ball Female, 68 years Covington, KY First Symptom: 02/02
Dx: 03/05
dreaminghope
Sex: F
Data Quality: 1 star
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: severe
Jennifer Balliet Female, 60 years Bremerton, WA First Symptom: 12/09
Dx: 08/10
mattman
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Matt Balocca Male, 47 years Boston, MA First Symptom: 10/07
Dx: 03/08
Phyllis
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
Phyllis Balogh Female, 81 years Crown Point, IN First Symptom: 10/05
Dx: 05/06