About Global Genes Project

The Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world.

Sign Up for the RARE Open Registry Project™ Today!

Global Genes Project and PatientsLikeMe® have joined forces to create the RARE Open Registry Project™ (RARE ORP™) to provide a resource for patients and families fighting rare and genetic diseases.

Every time a person or family enters data into the RARE ORP™ system, they receive information back showing their data compared to other patients fighting similar diseases or taking similar therapies. 

The more you share, the easier it will be to find rare patients like you or your loved ones.

Register today -- it's fast and easy!



Profile Activity



Member since:
Jun 20, 2012

Last updated:
Oct 18, 2017

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