About AKU Society
The AKU Society is the patient organisation for people diagnosed with alkaptonuria (AKU).
AKU is also called black bone disease, as it turns bones black and brittle, causing painful joint disease and early-onset severe osteoarthritis.
In the UK, we've opened a National Alkaptonuria Centre to give patients access to expert care and the first potential treatment, nitisinone. In Europe, we have begun the international clinical trials of the drug nitisinone, aiming to determine if nitisinone can effectively treat AKU.
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Aug 3, 2011
Oct 18, 2017
|Oliver Timmis, CEO, AKU Society|
|Nick Sireau, Chairman and CEO|
|Lesley Harrison, Patient Support Manager|