PatientsLikeMe Newsletter Issue 40 - November 2010

MONTHLY MUSINGS

The holiday season is about to start, with Thanksgiving right around the corner here in the US. 

In my family, we have a Thanksgiving tradition that everyone at the table shares what they are most thankful for, even if some years there are almost 30 people with us.  Some mention family, or jobs, or improved health.  Others remember those who passed during the year or something positive that happened in their lives.

As we eat, we'll talk about these blessings, about good news in our lives, and just enjoy being there together, surrounded by people we love.  We put aside the challenges we are facing - the lost jobs, or poor health, or financial problems - and focus on the positives. It's a day to be thankful, and we are. We truly are.

And speaking of, I am thankful for the time we’ve spent together.  As you may have read in my forum announcement, I will be leaving PatientsLikeMe at the end of the month.  I have been honored to have been a part of this community, and I have learned a great deal from you.  Thank you for all you’ve shared with me and with one another.

I leave you in the capable hands of my colleague Kate Brigham, who will be taking over as your moderator.  Be well.

--Tim Horgan, Outgoing Community Manager   

JOIN THE CONVERSATION

Check out some of the hot topics in the forum.  Then jump in with your own questions and answers!

Just started time-released Mirapex
SueAnne1 has just switched from standard Mirapex to Mirapex ER (Extended Release).  Discuss the differences in dosage, side effects, insurance coverage and more. 

Join the “family reunion” in Las Vegas
How do you know that many PD members consider PatientsLikeMe just like family?  They start planning reunions!  Learn more about this group trip organized by lexiegirl

Where can I find a good MDS?
Finding the right doctor can make all the difference.  If you’re looking for a Movement Disorder Specialist (MDS), don’t miss this long-running list of recommendations.

Did you catch the full “PD Quilt Podcast Series”?
If not, get up to speed here.  We’ve logged interviews with pokie too, browncat87, vigwig, aunti j and cher441, who all contributed to the PatientsLikeMe PD quilt. 

GETTING TO KNOW YOU

At PatientsLikeMe, we believe in getting to know the person, not just the “patient.”  That’s why we interview members each month to find out more about how they approach life.  This month we are pleased to feature masato, a three-star member from Poland.

1. What puts a smile on your face?

Many, many things. When my children tell jokes, when my cat goes crazy, when I meet friends, when I remember funny situations, when I watch comedy. But sometimes I must remind my face, that when I smile inside, I must smile outside too.

2. How would you describe your attitude on life?

Be happy with what I have now or what I am now. I try to never regret that I did or didn’t do something. I avoid feeling bitterness and regret. Like in the popular song: “Don’t Worry, Be Happy.”

3. What is your favorite holiday tradition and why?

For me and my family, the holidays are a special time, because it is Christmas. Christmas is time full of love, silence and warmth. This is a period where time goes by quite differently than the rest of the year. For this reason, we prepare everything before Christmas. Then during this time we are glad for ourselves, family, friends, foods, smells, nature (we live in the mountains) and most of all God.

4. What features of PatientsLikeMe do you use most?

First I use “My Profile.”  It raises my consciousness about my health. Next I search for patients like me and information on what they do – how they treat PD, live and use unconventional methods to improve their health. Also, what does PD change in their life?

WHAT’S NEW AT PATIENTSLIKEME

  • Do you attend a regular support group meeting?  Or have friends or family members who might like to learn more about PatientsLikeMe – and maybe even sign up for your care team?  Don't forget about our Tell the World! page, where you can download and print condition-specific flyers about PatientsLikeMe.  You can also request a set of member business cards to help spread the word about your online “home away from home.”

THIS MONTH’S SITE IMPROVEMENTS

We are constantly working to improve our site.  In this section, we’ll keep you up-to-date on new tools and features designed to make your PatientsLikeMe experience even better. 

Here is our top functionality enhancement for November:

  • Do you have multiple conditions?  If so, you may have noticed that your primary symptom survey is now specifically tailored to your conditions (and just a tad bit longer). Notably, your "condition-specific symptoms" list will be the same as what was previously called the "primary symptoms" list.  Learn more here

 

 

See all newsletters

Newsletter Archive

Jul 2013

May 2013

Apr 2013

Mar 2013

Feb 2013

Jan 2013

Dec 2012

Nov 2012

Oct 2012

Sep 2012

Aug 2012

Jul 2012

Jun 2012

May 2012

Apr 2012

Mar 2012

Feb 2012

Jan 2012

Dec 2011

Nov 2011

Oct 2011

Sep 2011

Aug 2011

Jul 2011

Jun 2011

May 2011

Apr 2011

Mar 2011

Feb 2011

Jan 2011

Dec 2010

Nov 2010

Oct 2010

Sep 2010

Aug 2010

Jul 2010

Jun 2010

May 2010

Apr 2010

Mar 2010

Feb 2010

Jan 2010

Dec 2009

Nov 2009

Oct 2009