1. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated the condition COPD (Chronic Obstructive Pulmonary Disease)

    • First symptom:
    • Diagnosis: ?

    Adult onset asthma dx in 1989 approximately. Morphing into chronic bronchitis and never DON'T have a cough. Relocated to Florida and am in an asthma study on Dulera and the medication is not working as it should.

    Smoker in elementary school and high school and in the Army briefly. Chronic wheezing now as I have never had it before.

    Exposure to toxins while stationed at Ft. McClellan, Alabama and a Soldier MP in the US Army. Many medical conditions due to this exposure.

    I have Chronic Obstructive Lung Disease listed in my VA records but have never been treated for it. I will be pursuing a DX that I understand when going to the VA and pursuing proper treatment.

    CT scans from 2009 show a 2cm bulla and a .03cm nodule.

  2. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl shared details about Robaxin

  3. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl added a treatment evaluation for Robaxin

    • Perceived effectiveness for Stiffness/Spasticity: Moderate
    • Side Effects: Mild
    • Adherence: Usually
    • Burden: A little
    • Advice & Tips: Persistent and painful spasms in legs. Back on Robaxin.
    • Cost: < $25 monthly
    Persistent and painful spasms in legs. Back on Robaxin.
  4. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS
  5. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl was feeling neutral

    Breathing issues and some spasms.

  6. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her symptoms

    BetterBowel problems, Chest tightness, Dizziness (vertigo), Drowsy in a.m., Pain in lower back See more
    WorseBalance problems, Blurry vision, Brain fog, Depressed mood, Excessive daytime sleepiness (somnolence) See more
  7. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated the condition Asthma

    • First symptom:
    • Diagnosis:
  8. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her weight

    Weight Watchers point system

  9. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her weight

    I am doing Weight Watchers Points.

  10. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her weight

    I am on Weight Watchers

  11. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her bio

    I am a retired woman with a SPMS, Fibromyalgia, Endometriosis, Keratoconus and Hashimoto's Thyroiditis. I worked with GE Global Research in IT. I'm a classic computer geek. I love music, pistol shooting, and playing on my computer. I moved to Sarasota, FL in May 14 and am so happy here. We have beaches and baseball ... two things I love. 

    I'm a doer, a go-getter and Type A to a fault. I loved my career in IT and enjoyed climbing the corporate ladder. I thrived on the stress. I love learning.   Currently I sing in a choir (Alto) in the Diversity: Voices of Sarasota group, and am also standby percussion for the Sarasota Pops.  I'm also trying to learn how to play Celtic snare drum again with a group and am learning the Ukulele and playing that.  Keeping my mind and life active.  Am also looking into taking and learning Tai Chi.

    I live my life with my wife Cecilia who is the love of my life and supports me in everything I do and choose to do. I couldn't ask for anything more.

  12. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl became a 3 star data donor! star earnedstar earnedstar earned

  13. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 46
    • Aware of symptoms but no functional disability Cognition
    • Moderate disability that requires some help from others Vision
    • Aware of symptoms but no functional disability Speech
    • Mild disability but not requiring help from others Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation

    I am no long working (trying to work - do real estate, IT, or whatever). I am taking the stress off of my self and only doing what I WANT to do. I am pursuing musical endeavors which make me a lot happier. Singing, Ukulele, back to snare drumming. I am also looking into starting Tai Chi.

  14. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl was feeling very good

    Taking control of my weight and activity and making the best of it.

  15. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her weight

    Started Weight Watchers, did some activity and took Provigil.

  16. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl started taking Modafinil again

    Dosage100 mg daily (restarted )
  17. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her symptoms

    BetterBalance problems, Brain fog, Depressed mood, Excessive daytime sleepiness (somnolence), Headaches See more
    WorseBowel problems, Chest tightness, Dizziness (vertigo), Drowsy in a.m., Joint pain See more
    NewLoss of sensation in lower legs
  18. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl completed the QOL survey

  19. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her weight

  20. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl was feeling very good

    Feeling motivated for a new start and losing weight and getting in shape. Back on Provigil too.

  21. Show more