1. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl had a moderate relapse

    Dates
    -

    UTI's and leg spasms

  2. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:

    Just spent a week at a VA SCI clinic in Tampa. They were awesome. They confirmed I have SPMS (after years of RRMS). I never really have exacerbations any more just more nagging stuff that just gets a little worse over time.

  3. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her symptoms

    BetterSexual dysfunction, Rash or skin problems, Phlegm, MS hug (tight chest or torso), Heat intolerance See more
    WorseWalking problems, Stomach upset, Spasms in back, Pain, Muscle spasms in neck and shoulders See more
  4. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl became a 3 star data donor! star earnedstar earnedstar earned

  5. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her weight

  6. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl started taking Symbicort

    Dosage2 x 160 mcg-4.5 mcg/inh twice daily (starting )
  7. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl shared details about Combivent

  8. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl shared details about Combivent

  9. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl added a treatment evaluation for Combivent

    • Perceived effectiveness for COPD (Chronic Obstructive Pulmonary Disease): Moderate
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 100 mcg Four times daily
    • Advice & Tips: The mode of inhaler respimat is really easy to use and good at getting the medicine where it's needed.
  10. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl became a 3 star data donor! star earnedstar earnedstar earned

  11. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 50
    • Mild disability but not requiring help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Aware of symptoms but no functional disability Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation
  12. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her symptoms

    BetterWalking problems, Stiffness/Spasticity, Spasms in back, Pain, Muscle spasms in neck and shoulders See more
    WorseWheezing, Shortness of breath (dyspnea), Ringing in ears (tinnitus), Pain in lower back, Heat intolerance See more
    NewPhlegm
  13. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl was in the hospital for Bronchitis and COPD (Chronic Obstructive Pulmonary Disease)

    Date
    -
  14. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated the condition Bronchitis

    • First symptom: ?
    • Diagnosis: ?
  15. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her basic information

  16. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her bio

    I am a retired woman with a SPMS, COPD (pending), asthma, Fibromyalgia, Endometriosis, Keratoconus and Hashimoto's Thyroiditis. I worked with GE Global Research in IT. I'm a classic computer geek. I love music, pistol shooting, and playing on my computer. I moved to Sarasota, FL in May 14 and am so happy here. We have beaches and baseball ... two things I love. 

    I'm a doer, a go-getter and Type A to a fault. I loved my career in IT and enjoyed climbing the corporate ladder. I thrived on the stress. I love learning.   Currently I sing in a choir (Alto) in the Diversity: Voices of Sarasota group, and am playing ukulele which is awesome!   Keeping my mind and life active.  Am also looking into taking and learning Tai Chi.

    I live my life with my wife Cecilia who is the love of my life and supports me in everything I do and choose to do. I couldn't ask for anything more.

  17. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her profile picture

  18. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated the condition COPD (Chronic Obstructive Pulmonary Disease)

    • First symptom:
    • Diagnosis: ?

    Adult onset asthma dx in 1989 approximately. Morphing into chronic bronchitis and never DON'T have a cough. Relocated to Florida and am in an asthma study on Dulera and the medication is not working as it should.

    Smoker in elementary school and high school and in the Army briefly. Chronic wheezing now as I have never had it before.

    Exposure to toxins while stationed at Ft. McClellan, Alabama and a Soldier MP in the US Army. Many medical conditions due to this exposure.

    I have Chronic Obstructive Lung Disease listed in my VA records but have never been treated for it. I will be pursuing a DX that I understand when going to the VA and pursuing proper treatment.

    CT scans from 2009 show a 2cm bulla and a .03cm nodule.

    Went to ER on 4 May 15 after a bout of bronchitis that was not going away despite treatment. Treated with DuoNeb, Solumedrol and sent home with Z-pack, Combivent , and Prednisone taper ... feeling like a new person after the breathing treatment and steroids.

    Consult with Pulmonary doc soon. Even though I see COPD in my diagnostic criteria on my VA records: Chronic obstructive lung disease (ICD-9-CM 496) I really am not settling into that diagnosis until I understand my PFV tests, etc. That is why I placed "not diagnosed" but I am being treated as if I am.

  19. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl started taking Prednisone

    Dosage50 mg daily (starting )
  20. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS
  21. Show more