1. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl was feeling good for

    It's a good day. Off Aubagio for good now ... too many side effects. Taking a month off and may consier Gilenya. Not sure.

  2. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl was feeling neutral for

    I feel like I am having a really hard time with short term memory, multi-tasking and patience. Feel like I've gotten a whole lot dummer since my last relapse. Strange ... going to have to research.

  3. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl was feeling good for

    Trying to get stuff done ... checking errands off the list. One day at a time.

    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • 7484 thumb
      gkygrl
      Sex: F
      Data Quality: 3 stars
      Sensation: Moderate
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: moderate
      I am: g
      I have:
      MS

      gkygrl stopped taking Aubagio

      ReasonSide effects too severe
    • 7484 thumb
      gkygrl
      Sex: F
      Data Quality: 3 stars
      Sensation: Moderate
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: moderate
      I am: g
      I have:
      MS

      gkygrl stopped taking Aubagio

      ReasonSide effects too severe
    • 7484 thumb
      gkygrl
      Sex: F
      Data Quality: 3 stars
      Sensation: Moderate
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: moderate
      I am: g
      I have:
      MS

      gkygrl updated the condition multiple sclerosis

      • First symptom: February 1, 1990
      • Diagnosis: August 1, 2002

      Just spent a week at a VA SCI clinic in Tampa. They were awesome. They confirmed I have SPMS (after years of RRMS). I never really have exacerbations any more just more nagging stuff that just gets a little worse over time.

      Update July 2017 - am in with a local MS neurologist in Sarasota, FL who is testing me for other MS mimics but most importantly NMO (Devic's disease) - spent 3 days in the hospital with optic neuritis on the high dose IV steroids and then an oral taper. I don't seem to fit the SPMS course but my disease seems to look more like Devic's. Waiting for the blood tests to come back.

      5 comments from other members. Only showing public users' comments. Sign up to see all comments!
        7484 thumb
        gkygrl about 3 months ago

        The SPMS label seemed to come because I wasn't having flares per se ... just things getting worse. But I just had a flare recently and it took a lot out of me. Still not back yet. Patience. Will have to see what some new tests show.

        7484 thumb
        gkygrl about 3 months ago

        I don't think I should be carrying the label of SPMS.

        7484 thumb
        gkygrl about 3 months ago

        Yes they do - Derrick Robertson, MD - he leads the MS team at USF as well. I am actually seeing a doctor locally in Sarasota outside the VA who is doing more testing on me for NMO - I just had an optic neuritis flare and was in the hospital for a course of steroids. The usual stuff.

    • 7484 thumb
      gkygrl
      Sex: F
      Data Quality: 3 stars
      Sensation: Moderate
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: moderate
      I am: g
      I have:
      MS

      gkygrl completed the MSRS survey

      • MSRS: 53
      • Mild disability but not requiring help from others Cognition
      • Moderate disability that requires some help from others Vision
      • Mild disability but not requiring help from others Speech
      • Aware of symptoms but no functional disability Swallowing
      • Moderate disability that requires some help from others Upper limb
      • Mild disability but not requiring help from others Walking
      • Mild disability but not requiring help from others Sensation
    • 7484 thumb
      gkygrl
      Sex: F
      Data Quality: 3 stars
      Sensation: Moderate
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: moderate
      I am: g
      I have:
      MS

      gkygrl shared details about Copaxone

    • 7484 thumb
      gkygrl
      Sex: F
      Data Quality: 3 stars
      Sensation: Moderate
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: moderate
      I am: g
      I have:
      MS

      gkygrl evaluated Copaxone from

      • StartedAug 8, 2002
      • Effectiveness Can’t tell (for multiple sclerosis)
      • Side effects Severe
      • Adherence Always
      • Burden Somewhat hard to take
      • Cost< $25 monthly
      • Advice & TipsI have discontinued Copaxone 40 mgs after a bad allergic reaction (anaphylactic reaction whcih was more than the immediate post injection reaction). Face flushing, chest and back pain, throat closing, extreme chest and back pain and heart rate jumping around from 55 to 155 in a matter of a minute - feeling of doom, thought I was dying for sure but did everything to stay calm and took 50 mgs of Benadryl and Combivent. It was pretty horrible to be honest. I have started Aubagio and am on my second dose today. Some diarrhea and night sweats.
      • View complete treatment history
    • 7484 thumb
      gkygrl
      Sex: F
      Data Quality: 3 stars
      Sensation: Moderate
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: moderate
      I am: g
      I have:
      MS

      gkygrl stopped taking Copaxone

      ReasonSide effects too severe
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