11088 full
Sex: M
Data Quality: 2 stars
MS: 25 yrs
Type: secondary progressive
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: mild
Upper limb: mild
Walking: moderate


Male, 57 years
Scottsdale, AZ

I've been living all over the world with MS for 25 years - after I stopped working I've dedicated my activities to helping others with MS.

Primary condition
Secondary progressive
First symptom
Advocacy, Alternative Medicine and 2 more
See less

About Oneida

Diagnosed with MS in 2/92 after birth of my 1st son followed by weeks of difficulty with balance and vision - thought it was vertigo. No medicine and minimal change in disease for several years. Started REBIF 2x week in 1996 while in Asia after a big time exacerbation - vision and balance. Then, changed to 3x/week when in Europe. Stayed with Rebif until 2006. Switched to Tysabri in 2009 after trying Cellcept for 9 months. Infusions continue. Secondary progressive is latest diagnosis. But there's always more to the story. Update 7/16: been taking Gilenya for a few years; taking Provigil to help with energy; Levothyroxine; bunch of vitamins too. 



Comments: 36 updates, 7 for others
Member since: Oct 01, 2008
Last Login Aug 17, 2017