1. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    2 people posted in the ALS/MND forum

    Latest posts:
    MikeB60 in Feeling Lost - Practical Concerns of a Caregiver of Newly Diagnosed

    My story is very similar. I work full time and have a caregiver for my husband while I am at work.  I care for him before work, after work and on the weekends. There is no easy answer and there are limited resources available. My husband's...

    MikeB60 in Feeling Lost - Practical Concerns of a Caregiver of Newly Diagnosed

    My story is very similar. I work full time and have a caregiver for my husband while I am at work.  I care for him before work, after work and on the weekends. There is no easy answer and there are limited resources available. My husband's...

    MikeB60 in What's the story with radicava??

    I received an email from Searchlight that it is now available. I was told I needed a prescription from my Doctor. I have contacted my Doctor and he is working on it.

  2. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    4 people posted in the ALS/MND forum

    Latest posts:
    JeanetteDeVita in My story, living with ALS.

    Look at you, Gus! Thanks for sharing, it's so nice to see your face. 

    MikeB60 in My story, living with ALS.

    Your last sentence hit home. The disease is moving rapidly in me.  In less than two years the only thing I can still do is chew and swallow. I am not saying this for any other reason but to say do everything you can to stay healthy. You don't want...

    Gusprieto in My story, living with ALS.

    Hi Mikeb60, Just keep on fighting, I so appreciate your words and comments. Blessings to you you, from a pALS, who cares. 

  3. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    1 person posted in the ALS/MND forum

    TipaCow in Daily Devotional

    Friday, August 4, 2017 Someone of Value "But we have this treasure in earthen vessels, that the excellence of the power may be of God and not of us." —2 Corinthians 4:7 When we think of the apostles, we think of holy men of God. And though they...

  4. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    3 people posted in the ALS/MND forum

    DawnB101 in Cannabis

    There are tincture drops that go under the tongue, or topical creams.

    Gill_G in Cannabis

    I use CBD oil. It is administered with a dropper sublingually. 

    TipaCow in Daily Devotional

    Monday, July 24, 2017 An Unlikely Leader And the LORD said to Gideon, "The people who are with you are too many for Me to give the Midianites into their hands, lest Israel claim glory for itself against Me, saying, 'My own hand has saved me.'"...

  5. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated her profile picture

  6. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    1 person posted in the ALS/MND forum

    TipaCow in Daily Devotional

    Saturday, July 22, 2017 Power in Unity "Again I say to you that if two of you agree on earth concerning anything that they ask, it will be done for them by My Father in heaven." —Matthew 18:19 During World War II, a group of American pilots known...

  7. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    5 people posted in the ALS/MND forum

    Latest posts:
    PeterFingerlakes in new to PLS need help and advice

    Looking through your postings there have been a lot of suggested or established diagnoses.  While it is nice to have an answer, none of the diagnosis answers are good.  Yes, baclofen can cause fatigue.  Diazepam (Valium) does so as well. ...

    PeterFingerlakes in Free hoist ukv

    Sadly I cannot collect them from London, but I thank you for making the offer to others with a need.

    Zefer in Masitinib vs masivet

    My neurologist assistant also did not reccomend masivet.

  8. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated # profile picture

  9. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    4 people posted in the ALS/MND forum

    Latest posts:
    Jackart in Do you believe in stem cell treatment for A LS/MND/Lou Gehrig's disease? I don't. !

    I've not seen any evidence that stem cells is a valid treatment for ALS. I was given the same 2-5 year life expectancy. Two and a half months after being diagnosed, I meet three people that I considered high functioning who had been living with...

    sheronemus in Do you believe in stem cell treatment for A LS/MND/Lou Gehrig's disease? I don't. !

    I believe that stem cells will be a part of the solution but our understanding of how to cultivate and place stem cells is not currently sufficient to be considered as a treatment. There are reputable companies doing research and trials and I hope...

    rickjor in ALS and Driving an automobile

    Hi! I was diagnosed in April 2015 w ALS  (bulbar). I have not lost any muscular function but my speech is slurred. I am an excellent driver but fear the possibility of being stopped by the police, due to my speech deficit. Anyone else in this...

  10. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    3 people posted in the ALS/MND forum

    andymcg in Do you believe in stem cell treatment for A LS/MND/Lou Gehrig's disease? I don't. !

    Slicky: You're not doing too bad yourself – 30 years.  Wow.  Good on you.  Did you get the same prognosis and life expectancy that I got.  – 2 to 5 years.  No neurologists can tell a patient whether they have got the fast or slow condition.  You...

    PatsyannB in ALS and Diets

    I just started reading these posts and I too believe in the brain-gut connection and have made small changes in my diet to support a healthy microbiome. My diet was always very healthy, all natural but probably lower in fat and calories than it...

    TipaCow in Daily Devotional

    Saturday, July 1, 2017 The Joy of Serving Serve the LORD with gladness; come before His presence with singing. —Psalm 100:2 I’ll let you in on a little secret: I think it’s really fun to serve the Lord. You might agree with me. I’m not saying...

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