1. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    1 person posted in the ALS/MND forum

    TipaCow in Daily Devotional

    Thursday, June 22, 2017 Nothing Quite Like It "For where two or three are gathered together in My name, I am there in the midst of them." —Matthew 18:20 I think Christians have the best songs of any religion on earth. The Christian faith is a...

  2. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    3 people posted in the ALS/MND forum

    Mumsey in Rifton Tram experience?

    I have a Sure Hands lift and ceiling Track that works great.  As the ALS progresses I can change the harness to a Hoyer sling.

    wennes in Technical Support - Where?

    Thanks for answering.I found cool potentially solutions.In many cases "available in the future".Often students, professors and universities show "great technological advancements".But you do not get any details or even a info.I found the...

    TipaCow in Daily Devotional

    Saturday, June 17, 2017 The Highest Privilege Also I heard the voice of the Lord, saying: "Whom shall I send, And who will go for Us?" Then I said, "Here am I! Send me." —Isaiah 6:8 The greatest moment in my life was the day that I accepted Jesus...

  3. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    3 people posted in the ALS/MND forum

    ladislav in Inefficient skeletal muscle oxidative function

    full text:https://www.nature.com...

    Diane in Rifton Tram experience?

    I have never used a Rifton Tram, but it doesn't appear to offer any option for head support which reduces the length of time it can be used for ALS. Other than that it does seem to be more compact than a Hoyer type of lift. If the price isn't more...

    TipaCow in Daily Devotional

    Friday, June 16, 2017 Ready or Not? He who testifies to these things says, "Surely I am coming quickly." Amen. Even so, come, Lord Jesus! —Revelation 22:20 Half of all Americans today claim to be born again. Even more claim to believe in God. If...

  4. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    7 people posted in the ALS/MND forum

    Latest posts:
    tobin1964 in Cushion

    Diane -  thank you very much for your reply. I went to your website and the information is tremendous. I am being measured  for a wheelchair next week and this information would be very helpful. Again thank you 

    Jackart in Cushion

    @Diane, Wow! Very informative...great site you've created. Thank you! Jack

    Mara_S in Cushion

    i use an Evolution cushion from varilite.  i like that it has valve that attendants just turn to let air in or out.  that way it can be firm during transfers, which is easier to slide my butt back so I am not slouched, but then let air out to be...

  5. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    4 people posted in the ALS/MND forum

    Latest posts:
    Diane in Cushion

    To get the correct fit and features, as well as to minimize delays due to errors in filing for insurance/Medicare reimbursement, you need to go through a therapist and/or seating specialist familiar with ALS. That person will assure that your...

    georgeGia in FDA approval for Radicava (edaravone)

    I listened to a webinare and I heard that this was effective on patients who have been diagnosed les than 2 yrs and was NOT effective on patients who have had it longer and with an FVC of 80 or less. Does anyone know if this is true?

    Capito in Behind the scenes: New pilot study to advance discovery in ALS

    I have ALS!Sue Dyk

  6. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated # profile picture

  7. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated # profile picture

  8. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated # profile picture

  9. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated # profile picture

  10. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated # profile picture

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