1. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated the condition Parkinson's Disease

    • First symptom: September 1, 2005
    • Diagnosis: June 1, 2006
  2. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby became a 3 star data donor! star earnedstar earnedstar earned

  3. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby completed the PDRS survey

    • PDRS: 11
    • On treatment
    • none Mouth/throat
    • none Arms
    • mild Chest
    • mild Legs
  4. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her symptoms

    BetterExcessive daytime sleepiness (somnolence)
    WorseAnxious mood, Constipation, Pain, Sexual dysfunction
  5. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby started taking Carbidopa-Levodopa 25-100

    Dosage14 x 25 mg-100 mg daily (was 4.5 x 25 mg-100 mg daily until )
  6. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her weight

    • Weight: 155 lb
    • BMI: 25.0
  7. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby became a 3 star data donor! star earnedstar earnedstar earned

  8. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her weight

    • Weight: 155 lb
    • BMI: 25.0
  9. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her symptoms

    WorseStiffness/Spasticity, Excessive daytime sleepiness (somnolence)
    NewLeft leg drag
  10. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby completed the PDRS survey

    • PDRS: 10
    • On treatment
    • none Mouth/throat
    • none Arms
    • mild Chest
    • mild Legs

    stressful situations tend to stimulate the tremors.

  11. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby evaluated Carbidopa-Levodopa 25-100

    • StartedNov 23, 2010
    • Dosage4.5 x 25 mg-100 mg Daily
    • Effectiveness Moderate (for Parkinson's Disease)
    • Side effects Mild
    • Adherence Usually
    • Burden A little hard to take
    • Cost< $25 monthly
    • Advice & TipsI've tried it with food and without food; nothing much helps. It usually happens with the morning dose; often I end up going back to bed for a few hours, losing the morning entirely.
    • View complete treatment history
  12. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby was feeling good

  13. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby became a 3 star data donor! star earnedstar earnedstar earned

  14. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her weight

    • Weight: 160 lb
    • BMI: 25.8
  15. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her symptoms

    BetterInsomnia, Constipation, Pain, Fatigue, Anxious mood See more
  16. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby evaluated Aspirin from

    • StartedJan 22, 2009
    • Dosage81 mg Daily
    • Effectiveness Can’t tell (for General health)
    • Side effects None
    • Adherence Always
    • Burden Not at all hard to take
    • Cost< $25 monthly
    • View complete treatment history
  17. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    Stopped Aspirin

    • Stopped:
    • Reasons: Personal research
  18. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby evaluated CoQ10 (CoEnzyme Q10) from

    • StartedOct 24, 2007
    • Dosage1200 mg Daily
    • Effectiveness Can’t tell (for Parkinson's Disease)
    • Side effects None
    • Adherence Always
    • Burden Not at all hard to take
    • Cost$200+ monthly
    • View complete treatment history
  19. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    Stopped CoQ10 (CoEnzyme Q10)

    • Stopped:
    • Reasons: Doctor's advice
  20. Portrait default thumb
    toby
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby completed the QOL survey

  21. Show more