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    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA was feeling bad

    Ran out of pain pills and the old ones do not help in the meantime. They give me stomach aches as does just about everything else....My hands are killing me. The one REALLY GREAT thing about this year is that my husband got our gas heater hooked up and I don't have to feed a fire 24-7! This will be very noticeable when he goes to do some work out of town for his company (he works for the state).

  2. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA was feeling neutral

    Hands and wrists are feeling better, but I am afraid I am developing a sore throat and sinus infection (we all know the symptoms of THAT! Haven't had sinus problems for years until I had my nose squished by the ground and straightened by Dr. Lacey (ENT). Getting ready to start on Orencia which was delayed by our one month camping (we have a large pop up trailer and 1 ton diesel pick up to tow it with!) trip to Calgary, Alberta, Canada and various spots both coming and going. The trip did not cause me any physical issues, surprisingly enough and was a wonderful experience. We are trying to do as much traveling as we can with my husband's retirement approaches late next year. He turned 60 on our trip and I am 6 years younger so I turned 54 soon after our return. Both of us felt our ages on this trip more than before....My husband enforced the "use the cane" rule more than usual. I don't particularly need the support, more the balance (if you hear a crash, it will be me!)

  3. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA was feeling neutral

  4. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA was feeling bad

    Our current weather system arrived with a huge fall in air pressure and a corresponding rise in my pain levels! We flew in last night after my husband's convention only to find out he had left my car keys in the backpack he accidentally left at a meeting! We had to rent a car to drive the 80 miles north to our home in our little country town of Durham! My spare car keys are down the side door of the car where my daughter accidentally dropped them! The door will have to be taken apart to get to those! I managed to feed the cats only to have it start raining!

  5. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA was feeling neutral

    Right hand hurts badly and am losing the use of first 3 fingers for gripping or individually for pressure tasks. Good because I get my Simponi Aria infusion today and that usually helps all over.

  6. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA updated her bio

    Been fighting RA for over 25 years and have been on steroids all 25. Live on a small (10 acre) walnut ranchette in rural Durham, northern CA. Used to have all sorts of livestock, but we are now down to 3 lady cats. I worked for many years as a medical biller and miss it very much as my dr will not let me go back to work. My main hobby is genealogy.

    I have a small consulting business (me!) and have taught medical billing to companies wishing to start up DME & HME businesses. I have 5 adult children: a son (who is engaged to a wonderful young lady!) and step daughter born in 1984,  step son (both parents deceased) and daughter both born in 1985, her husband born in 1982, step daughter born in 1987. I started in genealogy because I am an adoptee who has found her birthfamily and just kept looking! I have done some consulting work in genealogy as well, but prefer to help folks for free as many have done for me.

    I have tried gold shots, Humira, methotrexate, Enbrel, plaquenil and Remicade, Arava, etc. Remicade was the most effective treatment for me and I hope to convince my rheumatologist to put me back on it. I am currently on Simponi Aria and it seems to have some limited effectiveness! have been blessed with excellent insurance thru my husband's employer (St of CA) and have had 3 wonderful rheumatologists along the way. I have had a GP that is willing to listen and try new things as I have developed Degenerative Joint and Disc Disease esp in my top 4 or 5 vertebrae. They have deteriorated to the point that surgery to fuse them is no longer possible. Obviously, this causes a lot of pain, most of which I have simply learned to live with although I do have fentanyl patches and oxycodone for breakthrough pain. In late 2012 I had a heart attack that required the implantation of a pacemaker which helps enormously. Following the heart attack, I had a stroke which has cause some memory loss although I have recovered almost completely from it. I do walk with a cane, mostly for balance. I have broken my nose 3 different times in my life and had 2 repair surgeries for it. It seems my kidneys have gone south on me, probably due to all of the medications. I have acquired a kidney specialist due to my continuing stage 3 kidney disease. I also have Fibromyalgia. I have developed some dental problems, partly due to my birthmother's having taken Tetracycline when she was 4 months pregnant with me. I am also allergic to Tetracycline and extremely sensitive to penicillin. I have a complete plate on the bottom, but hate to wear it (excellent dentist!) and have been undergoing tooth removal followed by implantation on my upper jaw. The last round of dental surgery was the worst as my tooth roots had been very far up in the jaw and sinus cavities and became infected. While I wait for my dr to return from vacation, I have been just living with the pain. Ask me anything and I will try to answer! I am very open to all questions and discussions, but you may find me VERY protective of my kids and 4 senior lady cats! (ages 17, 16, 11, and not sure). My daughter and cats are VERY protective of me (I call them my herd of pit bulls!) and as my daughter is also in the medical industry, she keeps up with my medical issues for me. She is a TRUE blessing as are all of my kids and cats!

  7. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA updated her profile picture

  8. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA updated the condition Rheumatoid Arthritis (RA)

    • First symptom: May 1, 1983
    • Diagnosis: June 1, 1985
  9. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA updated her basic information

  10. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA was feeling good

    My husband was out of town (and will be until Wed afternoon) on another job he works at occasionally. He tends to start drinking and get mean to me most days and I'm tired of it. My new arthritis meds, Simponi-Aria, seem to be finally working well. I couldn't notice any difference the first 2 infusions, but this past week right before my infusion I noticed I was having more trouble than I had been and was more tired and having more joint problems. Those problems all went away right after I had my 1/2 hour infusion, even though the nurse had an awful time getting a vein to work. I worked out in the back field today, going over the leftover English walnuts that our farmer who takes care of them missed during harvest, There are always some left after harvest and it's not his fault, but I like to pick them up and make some glazed walnuts for my hubby who loves them and send some to various relatives who don't get any elsewhere.

  11. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA was feeling bad for

  12. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA updated her symptoms

    BetterSweating excessive, Restlessness, Problems concentrating, Pain in lower back, Muscle tension See more
    WorseFrequent urination, Persistent worry, Palpitations
    NewNervousness, Drowsiness, Dehydration
  13. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA started taking Simponi

    Dosage50 mg/0.5 mL every 8 weeks (starting )
  14. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA evaluated Simponi

    • StartedAug 15, 2014
    • Dosage50 mg/0.5 mL Every 8 Weeks
    • Effectiveness Can’t tell (for Rheumatoid Arthritis (RA))
    • Side effects None
    • Adherence Always
    • Burden A little hard to take
    • Cost< $25 monthly
    • View complete treatment history
  15. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA completed the QOL survey

  16. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA stopped taking Zolpidem

    ReasonSide effects too severe
  17. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA evaluated Zolpidem from

    • StartedSep 1, 2010
    • Dosage10 mg Daily
    • Effectiveness Moderate (for Difficulty sleeping through night)
    • Side effects Severe
    • Adherence Always
    • Burden A little hard to take
    • Cost< $25 monthly
    • Advice & TipsMade me virtually comatose.
    • View complete treatment history
  18. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA stopped taking Promethazine

    ReasonDoctor's advice
  19. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA evaluated Promethazine from

    • StartedJun 1, 2008
    • DosageAs needed
    • Effectiveness Moderate (for Nausea and vomiting)
    • Side effects Mild
    • Adherence Always
    • Burden A little hard to take
    • Cost< $25 monthly
    • View complete treatment history
  20. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Gender: F
    • Age: 54
    Condition: Rheumatoid Arthritis (RA) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: b
    I have:
    Rheumatoid Arthritis (RA)

    25yrRA stopped taking Propranolol

    ReasonDoctor's advice
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