1. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona became a 3 star data donor! star earnedstar earnedstar earned

  2. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona updated his symptoms

    BetterStiffness/Spasticity, Raynaud's phenomenon, Loss of energy
    WorseFasciculations, Back pain
  3. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

  4. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling good

  5. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona updated the condition Lichen Simplex Chronicus

    • First symptom: March 25, 2010
    • Diagnosis: January 7, 2012

  6. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling good

  7. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona updated the condition High Cholesterol (Hypercholesterolemia)

      • First symptom: ?
      • Diagnosis: ?
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona evaluated Interactive metranome

      • StartedFeb 8, 2011
      • Dosage3 hr Weekly
      • Effectiveness Major (for Support quality of life)
      • Side effects None
      • Adherence Usually
      • Burden A little hard to take
      • Cost< $25 monthly
      • Advice & TipsI still believe that Interactive Metronome is one of the best front line defenses against ALS for newly diagnosed or any patient with some degree of motor function there is. I have been doing this for five years and although I have progressed I believe that IM has slowed the progression dramatically. You can find the case study that IM did on me here http://www.interactivemetronome.com/images/larry-als-case-study.pdf
      • View complete treatment history
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

      2 comments from other members. Only showing public users' comments. Sign up to see all comments!
        27310 thumb
        nacona 3 days ago

        Dragon Speech Recognition is great if you can still talk, used it for about 4 years. Otherwise I'd have to say Tobii eye go.

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona updated the condition Degenerative Disc Disease

      • First symptom: ?
      • Diagnosis: ?
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling good

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling good

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