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Compare treatments, symptoms and experiences with people like you and take control of your health

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Share your experience, give and get support to improve your life and the lives of others

Track your health

Chart your health over time and contribute to research that can advance medicine for all

Member Stories: The Napkin Notes Dad

“Our brother Stephen was living with ALS and we thought, ‘there has to be a better way.’ There is. By sharing our experiences, we can all contribute new data that can accelerate research and help create better treatments. Our experiences can actually change medicine… for good.”

Jamie & Ben Heywood
Co-founders, PatientsLikeMe

News

PatientsLikeMe Appoints Jason Johnson Executive Vice President and Head of R&D
Jason leads our research, data science and informatics teams, which analyze and merge patient-reported and other types of data to develop models of disease progression and generate new insights. 

PatientsLikeMe Names Michael Evers New Executive Vice President of Consumer and Technology Group 
Michael will focus on creating value for patients and directing the company’s marketing, engineering, user experience and design, product management, patient advocacy and government compliance teams.



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  • 325,000 members
  • 2,400+ conditions
  • 60+ published research studies
  • 27 million data points about disease