Waldenstrom macroglobulinemia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Waldenstrom macroglobulinemia?

Waldenstrom macroglobulinemia is a rare, indolent (slow-growing) non-Hodgkin lymphoma. It is a plasma cell disorder in which large amounts of a protein called IgM are produced resulting in hyperviscosity (thickness) of the blood.

Common symptoms reported by people with Waldenstrom macroglobulinemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Waldenstrom macroglobulinemia

Let’s build this page together! When you share what it’s like to have Waldenstrom macroglobulinemia through your profile, those stories and data appear here too.

Got a question about living with Waldenstrom macroglobulinemia? Members in the forum might have the answers.

Compare treatments taken by people with Waldenstrom macroglobulinemia

Let’s build this page together! When you share what it’s like to have Waldenstrom macroglobulinemia through your profile, those stories and data appear here too.

Got a question about living with Waldenstrom macroglobulinemia? Members in the forum might have the answers.

Who has Waldenstrom macroglobulinemia on PatientsLikeMe?

  • 1 new patients joined this month
  • 67 say Waldenstrom macroglobulinemia is their primary condition

Age
Age Proportion # of patients
<20 1
20s 0
30s 2
40s 3
50s 6
60s 26
70+ 33
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 4
60-69 years 6
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 36
Female 39

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 21
Not Diagnosed 0

These charts show data from Waldenstrom macroglobulinemia patients who have completed their condition history
Last updated: