Vaginismus

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is vaginismus?

Vaginismus is an involuntary spasm of the muscles surrounding the vagina. The spasms close the vagina. Vaginal penetration during sex is difficult or impossible and vaginal pain is common during sexual intercourse and pelvic examinations.

Common symptoms reported by people with vaginismus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with vaginismus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Outpatient PT)
Type
Physical Therapy
How many have tried
3
Tried for
vaginismus (3)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Carpel tunnel wrist brace)
Type
Equipment
How many have tried
1
Tried for
pain (1)

Data from patients with vaginismus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with vaginismus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Outpatient PT)
Perceived effectiveness
for vaginismus (1 evaluation)
Side effects
Total evaluations
1
Tried for
vaginismus (3)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
abdominal bloating lack of motivation
Total evaluations
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Carpel tunnel wrist brace)
Perceived effectiveness
for pain (1 evaluation)
Side effects
muscle stiffness
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with vaginismus, who reported starting treatments within the last 5 years.
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Who has vaginismus on PatientsLikeMe?

  • 1 new patients joined this month
  • 20 say vaginismus is their primary condition

Age
Age Proportion # of patients
<20 3
20s 19
30s 20
40s 2
50s 8
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 4
30-39 years 3
40-49 years 2
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 54

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 22
Not Diagnosed 6

These charts show data from vaginismus patients who have completed their condition history
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