Trigeminal neuralgia

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What is trigeminal neuralgia?

Trigeminal neuralgia is a facial pain syndrome due to a disorder of the 5th cranial nerve. It is characterized by some combination of sharp, stabbing, intense facial pain.

Common symptoms reported by people with trigeminal neuralgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with trigeminal neuralgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
29
Tried for
trigeminal neuralgia (29)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
11
Tried for
pain (7) trigeminal neuralgia (4)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
10
Tried for
trigeminal neuralgia (10)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7) trigeminal neuralgia (1)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
6
Tried for
pain (4) anxious mood (2)
1 more
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
5
Tried for
trigeminal neuralgia (5) pain (1)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Tried for
pain (3) depressed mood (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
4
Tried for
anxious mood (2) pain (2)

Data from patients with trigeminal neuralgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with trigeminal neuralgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tegretol)
Perceived effectiveness
for trigeminal neuralgia (15 evaluations)
Side effects
balance problems excessive daytime sleepiness (somnolence) 15 more
Total evaluations
15
Tried for
trigeminal neuralgia (29)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
brain fog dizziness 3 more
Total evaluations
6
Tried for
pain (7) trigeminal neuralgia (4)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for trigeminal neuralgia (10 evaluations)
Side effects
drowsiness itching 2 more
Total evaluations
11
Tried for
trigeminal neuralgia (10)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (9 evaluations)
Side effects
anxiety attacks dizziness 7 more
Total evaluations
9
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (2 evaluations)
Side effects
dry mouth sleeplessness 1 more
Total evaluations
2
Tried for
pain (7) trigeminal neuralgia (1)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
5
Tried for
pain (4) anxious mood (2)
1 more
Treatment name(s)

(Trileptal)
Perceived effectiveness
for trigeminal neuralgia (1 evaluation)
Side effects
nausea problems with focusing eyes
Total evaluations
2
Tried for
trigeminal neuralgia (5) pain (1)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
decreased appetite
Total evaluations
2
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
excessive daytime sleepiness (somnolence) balanced translocation 4 more
Total evaluations
3
Tried for
pain (3) depressed mood (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for anxious mood (6 evaluations)
Side effects
short term memory problems sleepiness
Total evaluations
8
Tried for
anxious mood (2) pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with trigeminal neuralgia, who reported starting treatments within the last 5 years.
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Who has trigeminal neuralgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 27
30s 109
40s 259
50s 292
60s 197
70+ 85
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 80
30-39 years 128
40-49 years 126
50-59 years 85
60-69 years 17
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 142
Female 838

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 531
Not Diagnosed 32

These charts show data from trigeminal neuralgia patients who have completed their condition history
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