What is Sturge-Weber syndrome?

Sturge Weber syndrome, a congenital disorder, is characterized by the presence of a port-wine birthmark on one or both sides of the face. Additional clinical manifestations may include seizures, glaucoma, and cognitive deficits.

How do members experience Sturge-Weber syndrome?

Top 5 symptoms reported by people with Sturge-Weber syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Sturge-Weber syndrome*

Who has Sturge-Weber syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 2
30s 4
40s 4
50s 3
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 8
Female 9