Stargardt's disease
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Stargardt's disease?
Stargardt's Disease is a rare inherited eye disorder in children that involves progressive vision loss and legal blindness. This is caused by degeneration of the macula, the tissue in the center of the retina. The macula aids in sharp, central vision which is key to tasks like reading or driving.
Common symptoms reported by people with Stargardt's disease
Treatments taken by people with Stargardt's disease
Let’s build this page together! When you share what it’s like to have Stargardt's disease through your profile, those stories and data appear here too.
Got a question about living with Stargardt's disease? Members in the forum might have the answers.
Compare treatments taken by people with Stargardt's disease
Let’s build this page together! When you share what it’s like to have Stargardt's disease through your profile, those stories and data appear here too.
Got a question about living with Stargardt's disease? Members in the forum might have the answers.
Who has Stargardt's disease on PatientsLikeMe?
- 15 patients have this condition
- 0 new patients joined this month
- 10 say Stargardt's disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 3 | |
| 30s | 6 | |
| 40s | 3 | |
| 50s | 2 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 2 | |
| 30-39 years | 2 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 6 | |
| Female | 9 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 7 | |
| Not Diagnosed | 0 |