What is spina bifida?

Spina bifida is a developmental congenital disorder caused by the incomplete closing of the embryonic neural tube. Some vertebrae overlying the spinal cord are not fully formed and remain unfused and open.

How do members experience spina bifida?

Top 5 symptoms reported by people with spina bifida*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for spina bifida*

Who has spina bifida on PatientsLikeMe?

Age

Age Proportion # of patients
<20 6
20s 15
30s 44
40s 55
50s 40
60s 19
70+ 11

Distribution of sex

Sex

Sex Proportion # of patients
Male 46
Female 141