Shone's complex
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Shone's complex?
Shone's complex is a rare, congenital heart disease that is characterized by four abnormalities on the left side of the heart. These are namely coarctation of the aorta, valvular and subvalvular aortic stenosis, “parachute” mitral valve, and supravalvular mitral membrane (SVMM).
Common symptoms reported by people with Shone's complex
Treatments taken by people with Shone's complex
Let’s build this page together! When you share what it’s like to have Shone's complex through your profile, those stories and data appear here too.
Got a question about living with Shone's complex? Members in the forum might have the answers.
Compare treatments taken by people with Shone's complex
Let’s build this page together! When you share what it’s like to have Shone's complex through your profile, those stories and data appear here too.
Got a question about living with Shone's complex? Members in the forum might have the answers.
Who has Shone's complex on PatientsLikeMe?
- 5 patients have this condition
- 0 new patients joined this month
- 3 say Shone's complex is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 1 | |
| 30s | 1 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 2 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 2 | |
| Not Diagnosed | 1 |
Let’s build this page together! When you share what it’s like to have Shone's complex through your profile, those stories and data appear here too.
Got a question about living with Shone's complex? Members in the forum might have the answers.