What is schwannomatosis?

Schwannomatosis also known as neurofibromatosis type 3, is a genetic disorder of the nervous system that causes multiple tumors to grow along the path of nerves.

How do members experience schwannomatosis?

Top 5 symptoms reported by people with schwannomatosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for schwannomatosis*

Who has schwannomatosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 1
40s 4
50s 8
60s 2
70+ 2

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 13