Reynolds syndrome
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Reynolds syndrome?
Reynolds Syndrome is a rare condition characterized by scleroderma and primary biliary cirrhosis. It is considered to be related to a mutation in the LBR gene. The systems are reminiscent of CREST Syndrome.
Common symptoms reported by people with Reynolds syndrome
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Reynolds syndrome
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Neurostimulator Installation
Type
Procedures
How many have tried
1
Tried for
pain
(1)
Data from patients with Reynolds syndrome, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with Reynolds syndrome
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Reynolds syndrome
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
Treatment name(s)
Max Freeze
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain
(1)
Treatment name(s)
Neurostimulator Installation
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with Reynolds syndrome, who reported starting treatments within the last 5 years.
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Who has Reynolds syndrome on PatientsLikeMe?
- 57 patients have this condition
- 0 new patients joined this month
- 2 say Reynolds syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 3 | |
| 30s | 8 | |
| 40s | 14 | |
| 50s | 14 | |
| 60s | 9 | |
| 70+ | 3 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 5 | |
| 20-29 years | 7 | |
| 30-39 years | 4 | |
| 40-49 years | 4 | |
| 50-59 years | 0 | |
| 60-69 years | 2 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 50 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 40 | |
| Not Diagnosed | 1 |
These charts show data from Reynolds syndrome patients who have completed their condition history
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