Reynolds syndrome

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What is Reynolds syndrome?

Reynolds Syndrome is a rare condition characterized by scleroderma and primary biliary cirrhosis. It is considered to be related to a mutation in the LBR gene. The systems are reminiscent of CREST Syndrome.

Common symptoms reported by people with Reynolds syndrome

Common symptoms
How bad it is
What people are taking for it
Common symptom
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
How bad it is
What people are taking for it
Pyridostigmine
Common symptom
How bad it is
What people are taking for it
Codeine-acetaminophen (paracetamol) Flurbiprofen Max Freeze
Common symptom
How bad it is
What people are taking for it
Alprazolam Buspirone Diazepam
Common symptom
How bad it is
What people are taking for it
Duloxetine Sertraline
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Reynolds syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lotrel)
Type
Prescription Drug
How many have tried
1
Tried for
Reynolds syndrome (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Data from patients with Reynolds syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Reynolds syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lotrel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Reynolds syndrome (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Pamelor)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None
Data from patients with Reynolds syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has Reynolds syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 2 say Reynolds syndrome is their primary condition
Age
Age Proportion # of patients
<20 0
20s 3
30s 8
40s 11
50s 15
60s 11
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 7
30-39 years 4
40-49 years 4
50-59 years 0
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 50
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 40
Not Diagnosed 1
These charts show data from Reynolds syndrome patients who have completed their condition history
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