What is Rett syndrome?
Rett syndrome, a neurodevelopmental disorder that affects girls almost exclusively, is characterized by normal early growth and development followed by a slowing of development, distinctive hand movements, slowed brain and head growth, problems with walking, seizures and intellectual disability.
How do members experience Rett syndrome?
Top 5 symptoms reported by people with Rett syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Rett syndrome*
Who has Rett syndrome on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 0 | |
30s | 5 | |
40s | 4 | |
50s | 1 | |
60s | 2 | |
70+ | 0 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 3 | |
Female | 10 |