REM sleep behavior disorder

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is REM sleep behavior disorder?

REM sleep behavior disorder (RBD) is a parasomnia. A parasomnia involves undesired events that happen while sleeping. RBD occurs when you act out vivid dreams as you sleep. These dreams are often filled with action. They may even be violent. Episodes tend to get worse over time.

Common symptoms reported by people with REM sleep behavior disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with REM sleep behavior disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(5 HTP TR)
Type
Supplement
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Excedrin Back & Body)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
pain (1)

Data from patients with REM sleep behavior disorder, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with REM sleep behavior disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for REM sleep behavior disorder (2 evaluations)
Side effects
Total evaluations
3
Treatment name(s)

(5 HTP TR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Excedrin Back & Body)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
excessive sweating
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with REM sleep behavior disorder, who reported starting treatments within the last 5 years.
Last updated:

Who has REM sleep behavior disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 9
30s 23
40s 33
50s 45
60s 53
70+ 33
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 11
30-39 years 12
40-49 years 12
50-59 years 14
60-69 years 6
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 88
Female 113

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 74
Not Diagnosed 21

These charts show data from REM sleep behavior disorder patients who have completed their condition history
Last updated: