Prader-Willi syndrome
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Prader-Willi syndrome?
Prader-Willi syndrome is a complex genetic disorder characterized by weak muscle tone, poor growth and delayed development. It causes a constant feeling of hunger that leads to chronic overeating and obesity.
Common symptoms reported by people with Prader-Willi syndrome
Treatments taken by people with Prader-Willi syndrome
Let’s build this page together! When you share what it’s like to have Prader-Willi syndrome through your profile, those stories and data appear here too.
Got a question about living with Prader-Willi syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Prader-Willi syndrome
Let’s build this page together! When you share what it’s like to have Prader-Willi syndrome through your profile, those stories and data appear here too.
Got a question about living with Prader-Willi syndrome? Members in the forum might have the answers.
Who has Prader-Willi syndrome on PatientsLikeMe?
- 23 patients have this condition
- 1 new patients joined this month
- 22 say Prader-Willi syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 7 | |
| 20s | 5 | |
| 30s | 4 | |
| 40s | 2 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 8 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 6 | |
| Female | 12 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 9 | |
| Not Diagnosed | 0 |