Pediatric infection-triggered autoimmune neuropsychiatric disorder

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

See more

What is pediatric infection-triggered autoimmune neuropsychiatric disorder?

Pediatric infection-triggered autoimmune neuropsychiatric disorder (PITAND), is characterized by the development of OCD-like symptoms, tics, and neuropsychiatric symptoms after a viral or bacterial infection. It is often grouped with PANS and PANDAS, although the terms may not be interchangeable.

Common symptoms reported by people with pediatric infection-triggered autoimmune neuropsychiatric disorder

Common symptoms
How bad it is
What people are taking for it
Common symptom
How bad it is
What people are taking for it
Meditation
Common symptom
How bad it is
What people are taking for it
Fluoxetine
Common symptom
How bad it is
What people are taking for it
Fluoxetine
Common symptom
How bad it is
What people are taking for it
Amphetamine-Dextroamphetamine Fluoxetine
Common symptom
How bad it is
What people are taking for it
Buffered aspirin Gabapentin
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with pediatric infection-triggered autoimmune neuropsychiatric disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
1
Tried for
pediatric infection-triggered autoimmune neuropsychiatric disorder (1)
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
1
Tried for
pediatric infection-triggered autoimmune neuropsychiatric disorder (1)
Data from patients with pediatric infection-triggered autoimmune neuropsychiatric disorder, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with pediatric infection-triggered autoimmune neuropsychiatric disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for pediatric infection-triggered autoimmune neuropsychiatric disorder (2 evaluations)
Side effects
flu like symptoms headaches
Total evaluations
2
Tried for
pediatric infection-triggered autoimmune neuropsychiatric disorder (1)
Treatment name(s)

(Rituxan)
Perceived effectiveness
for pediatric infection-triggered autoimmune neuropsychiatric disorder (1 evaluation)
Side effects
generalized weakness (asthenia)
Total evaluations
1
Tried for
pediatric infection-triggered autoimmune neuropsychiatric disorder (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None
Data from patients with pediatric infection-triggered autoimmune neuropsychiatric disorder, who reported starting treatments within the last 5 years.
Last updated:

Who has pediatric infection-triggered autoimmune neuropsychiatric disorder on PatientsLikeMe?

  • 1 new patients joined this month
  • 13 say PITAND is their primary condition
Age
Age Proportion # of patients
<20 9
20s 5
30s 3
40s 3
50s 2
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 9
Female 15
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 1
These charts show data from PITAND patients who have completed their condition history
Last updated: