Pulmonary fibrosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as member Bryan explains in this video.
What is pulmonary fibrosis?
Pulmonary fibrosis is a chronic, progressive fibrosing interstitial pneumonia of unknown cause and results in the lungs becoming thick and stiff, or scarred, over time. PF may be caused by medications, exposures, or underlying diseases of the autoimmune system.
Common symptoms reported by people with pulmonary fibrosis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with pulmonary fibrosis
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Oxygen therapy
Type
Prescription Drug
How many have tried
614
Tried for
idiopathic pulmonary fibrosis
(572)
pulmonary fibrosis
(42)
6 more
Type
Prescription Drug
How many have tried
184
Tried for
idiopathic pulmonary fibrosis
(178)
pulmonary fibrosis
(11)
1 more
Type
Prescription Drug
How many have tried
175
Tried for
idiopathic pulmonary fibrosis
(173)
pulmonary fibrosis
(3)
Treatment name(s)
Pulmonary Rehabilitation
Type
Physical Therapy
How many have tried
47
Tried for
idiopathic pulmonary fibrosis
(43)
pulmonary fibrosis
(7)
Type
Prescription Drug
How many have tried
23
Tried for
idiopathic pulmonary fibrosis
(14)
hypersensitivity pneumonitis
(4)
3 more
Type
Supplement
How many have tried
12
Tried for
idiopathic pulmonary fibrosis
(11)
pulmonary fibrosis
(2)
1 more
Type
Prescription Drug
How many have tried
11
Tried for
idiopathic pulmonary fibrosis
(6)
pulmonary fibrosis
(3)
2 more
Type
Prescription Drug
How many have tried
9
Tried for
idiopathic pulmonary fibrosis
(5)
shortness of breath (dyspnea)
(2)
2 more
Treatment name(s)
Oxygen Concentrator
Type
Equipment
How many have tried
8
Tried for
shortness of breath (dyspnea)
(7)
idiopathic pulmonary fibrosis
(1)
Type
Prescription Drug
How many have tried
7
Tried for
idiopathic pulmonary fibrosis
(3)
pulmonary fibrosis
(3)
1 more
Data from patients with pulmonary fibrosis, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with pulmonary fibrosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Oxygen therapy
Perceived effectiveness
for idiopathic pulmonary fibrosis (193 evaluations)
Total evaluations
199
Tried for
idiopathic pulmonary fibrosis
(572)
pulmonary fibrosis
(42)
6 more
Perceived effectiveness
for idiopathic pulmonary fibrosis (141 evaluations)
Total evaluations
145
Tried for
idiopathic pulmonary fibrosis
(178)
pulmonary fibrosis
(11)
1 more
Perceived effectiveness
for idiopathic pulmonary fibrosis (162 evaluations)
Total evaluations
161
Tried for
idiopathic pulmonary fibrosis
(173)
pulmonary fibrosis
(3)
Treatment name(s)
Pulmonary Rehabilitation
Perceived effectiveness
for idiopathic pulmonary fibrosis (33 evaluations)
Total evaluations
34
Tried for
idiopathic pulmonary fibrosis
(43)
pulmonary fibrosis
(7)
Perceived effectiveness
for idiopathic pulmonary fibrosis (18 evaluations)
Total evaluations
32
Tried for
idiopathic pulmonary fibrosis
(14)
hypersensitivity pneumonitis
(4)
3 more
Perceived effectiveness
for idiopathic pulmonary fibrosis (4 evaluations)
Side effects
heartburn
Total evaluations
8
Tried for
idiopathic pulmonary fibrosis
(11)
pulmonary fibrosis
(2)
1 more
Perceived effectiveness
for idiopathic pulmonary fibrosis (4 evaluations)
Total evaluations
10
Tried for
idiopathic pulmonary fibrosis
(6)
pulmonary fibrosis
(3)
2 more
Perceived effectiveness
for idiopathic pulmonary fibrosis (10 evaluations)
Total evaluations
13
Tried for
idiopathic pulmonary fibrosis
(5)
shortness of breath (dyspnea)
(2)
2 more
Treatment name(s)
Oxygen Concentrator
Perceived effectiveness
for shortness of breath (dyspnea) (2 evaluations)
Side effects
Total evaluations
3
Tried for
shortness of breath (dyspnea)
(7)
idiopathic pulmonary fibrosis
(1)
Perceived effectiveness
for idiopathic pulmonary fibrosis (1 evaluation)
Side effects
bowel problems
skin rash
Total evaluations
5
Tried for
idiopathic pulmonary fibrosis
(3)
pulmonary fibrosis
(3)
1 more
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with pulmonary fibrosis, who reported starting treatments within the last 5 years.
Last updated:
Who has pulmonary fibrosis on PatientsLikeMe?
- 8735 patients have this condition
- 21 new patients joined this month
- 7095 say PF is their primary condition
Age | Proportion | # of patients |
---|---|---|
<20 | 10 | |
20s | 107 | |
30s | 300 | |
40s | 649 | |
50s | 1110 | |
60s | 1905 | |
70+ | 3661 |
Age at first symptom | Proportion | # of patients |
---|---|---|
0-19 years | 18 | |
20-29 years | 29 | |
30-39 years | 65 | |
40-49 years | 181 | |
50-59 years | 396 | |
60-69 years | 450 | |
70+ years | 251 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 3454 | |
Female | 4444 |
Diagnosis status | Proportion | # of patients |
---|---|---|
Diagnosed | 2071 | |
Not Diagnosed | 143 |
These charts show data from PF patients who have completed their condition history
Last updated: