Occipital neuralgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is occipital neuralgia?

Occipital neuralgia is a distinct type of headache characterized by piercing, throbbing, or electric-shock-like chronic pain in the upper neck, back of the head, and behind the ears, usually on one side of the head.

Common symptoms reported by people with occipital neuralgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with occipital neuralgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Occipital nerve radiofrequency ablation)
Type
Procedures
How many have tried
4
Tried for
occipital neuralgia (2) pain (2)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
3
Tried for
pain (2) occipital neuralgia (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
3
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3) anxious mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (2) occipital neuralgia (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)
Type
Procedures
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Botox)
Type
Prescription Drug
How many have tried
2
Tried for
occipital neuralgia (2)

Data from patients with occipital neuralgia, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with occipital neuralgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Occipital nerve radiofrequency ablation)
Perceived effectiveness
for occipital neuralgia (1 evaluation)
Side effects
numbness pain 2 more
Total evaluations
5
Tried for
occipital neuralgia (2) pain (2)
Treatment name(s)

(Elavil)
Perceived effectiveness
for occipital neuralgia (1 evaluation)
Side effects
dry mouth
Total evaluations
1
Tried for
pain (2) occipital neuralgia (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (5 evaluations)
Side effects
anxiety attacks forgetting words 1 more
Total evaluations
5
Tried for
depressed mood (3) anxious mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive daytime sleepiness (somnolence) excessive dry mouth
Total evaluations
2
Tried for
pain (2) occipital neuralgia (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
excessive daytime sleepiness (somnolence) grogginess in morning 1 more
Total evaluations
3
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)
Perceived effectiveness
for pain (4 evaluations)
Side effects
pain
Total evaluations
4
Tried for
pain (3)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation nausea 1 more
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Botox)
Perceived effectiveness
for occipital neuralgia (1 evaluation)
Side effects
Total evaluations
1
Tried for
occipital neuralgia (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with occipital neuralgia, who reported starting treatments within the last 5 years.
Last updated:

Who has occipital neuralgia on PatientsLikeMe?

  • 5 new patients joined this month
  • 278 say occipital neuralgia is their primary condition

Age
Age Proportion # of patients
<20 1
20s 25
30s 68
40s 148
50s 156
60s 59
70+ 36
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 42
30-39 years 42
40-49 years 45
50-59 years 17
60-69 years 4
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 77
Female 419

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 194
Not Diagnosed 12

These charts show data from occipital neuralgia patients who have completed their condition history
Last updated: