What is Noonan syndrome?

Noonan syndrome is a genetic disorder that causes abnormal development of multiple parts of the body. Symptoms include, congenital heart defects, delayed puberty, webbed neck, abnormally shaped ears, short stature, and sagging eyelids.

How do members experience Noonan syndrome?

Top 5 symptoms reported by people with Noonan syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Noonan syndrome*

Who has Noonan syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 2
30s 2
40s 4
50s 1
60s 0
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 10